...
  • 主题
高级搜索  >
历史搜索 清空历史
首页> 外文期刊>Nutrition Metabolism >Phenylketonuria patients’ and their parents’ knowledge and attitudes to the daily diet - multi-centre study
【24h】

Phenylketonuria patients’ and their parents’ knowledge and attitudes to the daily diet - multi-centre study

机译：苯丙酮尿症患者及其父母对日常饮食的知识和态度-多中心研究

获取原文
           
页面导航
  • 摘要
  • 著录项
  • 相似文献
  • 相关主题

摘要

BackgroundThe aim of the study was to assess both patients’ and their parents’ knowledge of phenylketonuria (PKU) treatment and compliance with PKU diet. MethodsThe study included 173 PKU patients aged 10–19 and 110 parents of PKU children who were enrolled in the study on the basis of questionnaire data. The study also included 45 patients aged ≥20. ResultsOur study demonstrated that only 45% ( n =?74) of PKU patients knew daily Phe intake recommendations, 27% of patients ( n =?41) knew the Phe content in a minimum of three out of four researched food products. Patients’ knowledge concerning Phe intake ( p =?0.0181) and the knowledge of selected food products ( p =?0.041819) improved with age. We did not establish such a correlation in the group of PKU children’s parents.Approximately 31% of patients and 22% of parents reported helplessness, which increased with the child’s age, associated with the necessity to adhere to the diet; 30% of patients reported feeling ashamed of the fact that they could not eat all food products. Regardless of age, children were more likely than parents to report helplessness ( p =?0.032005).Among patients, 41.40% declared that they would wish to select products unassisted but their parents did not permit them to do so. The question of whether parents teach children self-reliance in meal preparation was answered affirmatively by 98% of parents and only 81% of children ( p =?0.0001). ConclusionOur data demonstrated that parents’ and children’s knowledge concerning treatment recommendations and food products does not have a direct impact on attitude to the PKU diet. Limiting children’s independence in meal selection, growing helplessness in the face of dietary adherence and shame resulting from the necessity to follow a different diet observed in PKU families are responsible for shaping and perpetuating a consistently negative attitude to the diet. The care of PKU paediatric patients requires consistent, long-term family and individual therapy which may counteract the effects of learned helplessness. In regard to the educational effort, a good parent-child relationship as well as the teaching of behaviours motivating patients to comply with the diet are of great importance.
机译：背景研究的目的是评估患者及其父母对苯丙酮尿症（PKU）治疗和对PKU饮食的依从性的了解。方法：该研究纳入了173名10-19岁的PKU患者和110名PKU儿童的父母，他们根据问卷调查数据进行了研究。该研究还包括了年龄≥20岁的45名患者。结果我们的研究表明，只有45％（n =？74）的PKU患者知道每日摄入Phe的建议，27％的患者（n =？41）知道至少四种研究食品中的三种中的Phe含量。随着年龄的增长，患者对Phe摄入量的了解（p =？0.0181）和所选食品的知识（p =？0.041819）。我们并未在北大儿童父母中建立这种相关性。大约31％的患者和22％的父母报告无助感，随着孩子的年龄增加，这与坚持饮食的必要性有关; 30％的患者对无法吃完所有食品感到food愧。无论年龄大小，儿童比父母更容易报告无助感（p =？0.032005）。在患者中，有41.40％的儿童宣称他们希望选择无助的产品，但父母却不允许他们这样做。 98％的父母和仅81％的儿童肯定回答了父母是否教孩子在做饭方面自给自足的问题（p = 0.0001）。结论我们的数据表明，父母和孩子对治疗建议和食品的了解不会直接影响北大饮食的态度。限制儿童选择膳食的独立性，面对饮食坚持和无耻感的无助感越来越大，这是由于他们必须遵循北大家庭中观察到的不同饮食习惯而造成的，这导致人们对饮食习惯形成了持续的消极态度，并使这种态度持续存在。北大小儿科患者的护理需要一致的长期家庭和个人治疗，这可能抵消学习型无助的影响。在教育方面，良好的亲子关系以及教导患者遵守饮食习惯的行为教法非常重要。

著录项

相似文献

  • 外文文献
  • 中文文献
  • 专利
获取原文

客服邮箱：kefu@zhangqiaokeyan.com

京公网安备：11010802029741号 ICP备案号：京ICP备15016152号-6 六维联合信息科技 (北京) 有限公司©版权所有

  • 客服微信

  • 服务号