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End-of-life decision making by family caregivers of persons with advanced dementia: A literature review of decision aids:

机译:家庭照顾者对晚期痴呆症患者的临终决策:决策辅助资料的文献综述:

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Objectives:To investigate existing knowledge in the literature about end-of-life decision making by family caregivers of persons with dementia, focusing on decision aids for caregivers of persons with advanced dementia, and to identify gaps in the literature that can guide future research.Methods:A literature review through systematic searches in PubMed, CINAHL Plus with Full Text, and PsycINFO was conducted in February 2018; publications with full text in English and published in the past 10?years were selected in multiple steps.Results:The final sample included five decision aids with predominantly Caucasian participants; three of them had control groups, and three used audiovisual technology in presenting the intervention materials. No other technology was used in any intervention. Existing interventions lacked tailoring of information to caregivers’ preferences for different types and amounts of information necessary to make decisions consistent with patients’ values.Conclusion:Research is needed in e...
机译:目的:调查文献中有关痴呆症患者的家庭护理人员临终决策的现有知识,重点研究为老年痴呆症患者的护理人员进行决策的辅助手段,并找出文献中可指导未来研究的空白。方法:于2018年2月通过系统搜索PubMed,带有全文本的CINAHL Plus和PsycINFO进行文献综述;结果:最终样本包括五种决策辅助工具,其中主要是白人参与者;最终样本包括五种决策辅助工具。其中三个有对照组,三个使用视听技术介绍了干预材料。没有任何其他技术被用于任何干预。现有的干预措施缺乏针对护理人员偏爱的信息量身定制的信息,这些信息对于使决策与患者的价值观保持一致所必需的不同类型和数量的信息。

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