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Cultural adaptation and validation of patient decision aids: a scoping review

机译:文化适应和患者决策辅助工具的验证:范围回顾

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In order to promote self-determination, patients have to be actively involved with their care providers in health-care decision making, especially when such decisions involve personal preferences. Decision aids (DAs) are tools that can contribute to patient-centered decision-making processes. To benefit from previous fieldwork and avoid duplicating developmental efforts and producing many similar DAs, the adaptation of existing DAs to new cultural contexts is a resource-saving option. However, there are no guidelines on how to culturally adapt and validate DAs. This study aimed to identify and document existing procedures for the cultural adaptation and validation of patient DAs. A scoping review examined studies conducting cultural adaptation and/or validation of patient DAs. The following databases were searched in February 2016: CINAHL, EMBASE, Medline (Ovid), PASCAL, PsychINFO, and PubMed. From the 13 studies selected, 11 main procedures were identified: appraisal of the original DA, assessment of the new cultural context, translation, linguistic adaptation, cultural adaptation, usability testing, exploration of DA acceptability, test-retest reliability, content validity, con-struct validity, and criterion validity. A conceptual synthesis of these studies suggests there are four phases in the adaptation/validation process of DAs aimed at: 1) exploring the original DA and the new cultural context, 2) adapting the original DA to the new cultural context, 3)?lab testing the preliminary version of the adapted DA, and 4) field testing the adapted DA in a real use context. By facilitating the adaptation and broader implementation of DAs, patients may ultimately be empowered in decision-making processes.
机译:为了促进自决,患者必须积极地与其护理提供者一起参与医疗保健决策,尤其是当此类决策涉及个人喜好时。决策辅助工具(DAs)是有助于以患者为中心的决策过程的工具。为了从以前的田野调查中受益,避免重复开发工作并产生许多类似的DA,将现有DA适应新的文化背景是一种节省资源的选择。但是,没有关于如何在文化上适应和验证DA的指南。这项研究旨在识别和记录现有的程序,以适应患者DA的文化适应和验证。范围回顾审查了进行文化适应和/或验证患者DA的研究。 2016年2月对以下数据库进行了搜索:CINAHL,EMBASE,Medline(Ovid),PASCAL,PsychINFO和PubMed。从所选的13项研究中,确定了11个主要程序:原始DA的评估,新文化背景的评估,翻译,语言适应,文化适应,可用性测试,DA可接受性的探索,重测信度,内容效度, -结构有效性和标准有效性。这些研究的概念综合表明,针对DA的适应/验证过程有四个阶段,旨在:1)探索原始DA和新的文化背景; 2)使原始DA适应新的文化背景; 3)实验室测试改编的DA的初始版本,以及4)在实际使用环境中现场测试改编的DA。通过促进DA的适应和更广泛的实施,最终可以在决策过程中赋予患者权力。

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