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Collaborative Care: A Defining Characteristic for a Pulmonary Hypertension Center

机译：协作护理：肺动脉高压中心的定义特征

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IntroductionPulmonary hypertension (PH) is a complex, life-threatening disease. Development of pulmonary hypertension centers is recommended by pulmonary hypertension best practice guidelines and patient organizations to successfully care for patients. However, very little is published on the characteristics of these centers or the daily management required to care for this complex patient population. MethodsThis article, written by nurses who have extensive experience in managing patients with pulmonary hypertension, details the collaboration and workflows needed at a pulmonary hypertension center. Cohesive management among PH team members, patients, and caregivers is required for the long-term and successful care of patients. ResultsPH centers should have individual team members with clearly defined functional roles, policies and procedures that outline how to address the challenges of managing patients, effective communication between outpatient and inpatient teams, and well-educated staff to accurately diagnose and manage treatments, including accessing pulmonary arterial hypertension medications. Education of patients, concurrent with the support of caregivers and healthcare providers, plays a vital role in improving patients’ understanding of their disease state and treatment options that best suit their lifestyle. PH team members assist patients in developing self-care skills to better recognize and respond to worsening symptoms and manage medication side effects to improve patient outcomes. ConclusionsDefining collaborative care, work flows, and characteristics of a pulmonary hypertension center is essential to optimize care in this complex, chronic patient population. FundingActelion Pharmaceuticals US, Inc.
机译：简介肺动脉高压（PH）是一种复杂的威胁生命的疾病。肺动脉高压最佳实践指南和患者组织建议建立肺动脉高压中心，以成功照顾患者。但是，关于这些中心的特征或照顾这种复杂患者群体所需的日常管理的文献很少。方法本文由在肺动脉高压患者管理方面具有丰富经验的护士撰写，详细介绍了肺动脉高血压中心所需的协作和工作流程。 PH团队成员，患者和护理人员之间的凝聚力管理对于患者的长期成功护理至关重要。结果PH中心应具有明确定义职能职能，政策和程序的个人团队成员，概述如何应对管理患者的挑战，门诊和住院团队之间的有效沟通以及受过良好教育的员工以准确诊断和管理治疗方法，包括进入肺动脉高血压药物。在护理人员和医疗保健提供者的支持下，对患者进行的教育在提高患者对疾病状况和最适合其生活方式的治疗方案的理解方面起着至关重要的作用。 PH团队成员协助患者发展自我护理技能，以更好地识别和应对恶化的症状并管理药物副作用以改善患者预后。结论定义协作式医疗，工作流程和肺动脉高压中心的特征对于优化这种复杂的慢性患者群体的医疗至关重要。资助Actelion Pharmaceuticals US，Inc.

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