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首页> 外文期刊>Trials >An educational intervention to reduce pain and improve pain management for Malawian people living with HIV/AIDS and their family carers: study protocol for a randomised controlled trial
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An educational intervention to reduce pain and improve pain management for Malawian people living with HIV/AIDS and their family carers: study protocol for a randomised controlled trial

机译：为艾滋病毒/艾滋病携带者及其家庭照顾者减轻疼痛并改善疼痛管理的教育干预措施：一项随机对照试验的研究方案

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Background Many HIV/AIDS patients experience pain often due to advanced HIV/AIDS infection and side effects of treatment. In sub-Saharan Africa, pain management for people with HIV/AIDS is suboptimal. With survival extended as a direct consequence of improved access to antiretroviral therapy, the prevalence of HIV/AIDS related pain is increasing. As most care is provided at home, the management of pain requires patient and family involvement. Pain education is an important aspect in the management of pain in HIV/AIDS patients. Studies of the effectiveness of pain education interventions for people with HIV/AIDS have been conducted almost exclusively in western countries. Methods/design A randomised controlled trial is being conducted at the HIV and palliative care clinics of two public hospitals in Malawi. To be eligible, patient participants must have a diagnosis of HIV/AIDS (stage III or IV). Carer participants must be the individual most involved in the patient’s unpaid care. Eligible participants are randomised to either: (1) a 30-minute face-to-face educational intervention covering pain assessment and management, augmented by a leaflet and follow-up telephone call at two weeks; or (2) usual care. Those allocated to the usual care group receive the educational intervention after follow-up assessments have been conducted (wait-list control group). The primary outcome is pain severity measured by the Brief Pain Inventory. Secondary outcomes are pain interference, patient knowledge of pain management, patient quality of life, carer knowledge of pain management, caregiver motivation and carer quality of life. Follow-up assessments are conducted eight weeks after randomisation by palliative care nurses blind to allocation. Discussion This randomised controlled trial conducted in sub-Saharan Africa among people living with HIV/AIDS and their carers will assess whether a pain education intervention is effective in reducing pain and improving pain management, quality of life and carer motivation. Trial registration Current Controlled Trials ISRCTN72861423 .
机译：背景技术许多HIV / AIDS患者通常由于晚期HIV / AIDS感染和治疗副作用而遭受痛苦。在撒哈拉以南非洲，艾滋病毒/艾滋病患者的疼痛管理不理想。随着获得抗逆转录病毒疗法的改善直接导致生存期延长，与艾滋病毒/艾滋病相关的疼痛的患病率正在增加。由于大多数护理是在家中提供的，因此疼痛的治疗需要患者和家人的参与。疼痛教育是控制HIV / AIDS患者疼痛的重要方面。几乎完全在西方国家进行了针对艾滋病毒/艾滋病患者的疼痛教育干预措施有效性的研究。方法/设计马拉维两家公立医院的艾滋病毒和姑息治疗诊所正在进行一项随机对照试验。为符合资格，患者参与者必须具有HIV / AIDS诊断（III或IV期）。照顾者参与者必须是患者无偿护理中涉及最多的人。符合条件的参与者将被随机分配到以下两个方面：（1）30分钟的面对面的教育干预，涵盖疼痛评估和治疗，并在两周内分发传单和跟进电话;或（2）日常护理。在进行了随访评估之后，分配给常规护理组的人员接受了教育干预（等待名单对照组）。主要结果是通过简短疼痛清单测量的疼痛严重程度。次要结果是疼痛干扰，患者对疼痛管理的了解，患者的生活质量，护理人员对疼痛管理的了解，护理人员的动机和护理人员的生活质量。随访评估由随机分配的姑息护理护士在随机分配八周后进行。讨论在撒哈拉以南非洲对艾滋病毒/艾滋病感染者及其护理人员进行的这项随机对照试验将评估疼痛教育干预措施是否有效减轻疼痛和改善疼痛管理，生活质量和护理人员动机。试用注册电流控制试验ISRCTN72861423。

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