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首页> 外文期刊>Trials >Developing a core outcome set for people living with dementia at home in their neighbourhoods and communities: study protocol for use in the evaluation of non-pharmacological community-based health and social care interventions
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Developing a core outcome set for people living with dementia at home in their neighbourhoods and communities: study protocol for use in the evaluation of non-pharmacological community-based health and social care interventions

机译：为邻里和社区中在家中患有痴呆症的人制定一套核心成果：研究方案，用于评估基于非药理学的基于社区的健康和社会护理干预措施

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The key aim of the study is to establish an agreed standardised core outcome set (COS) for use when evaluating non-pharmacological health and social care interventions for people living at home with dementia. Drawing on the guidance and approaches of the Core Outcome Measures in Effectiveness Trials (COMET), this study uses a four-phase mixed-methods design: 1 Focus groups and interviews with key stakeholder groups (people living with dementia, care partners, relevant health and social care professionals, researchers and policymakers) and a review of the literature will be undertaken to build a long list of outcomes. 2 Two rounds of Delphi surveys will be used with key stakeholder groups. Statements for the Delphi surveys and participation processes will be developed and informed through substantial member involvement with people living with dementia and care partners. A consensus meeting will be convened with key participant groups to discuss the key findings and finalise the COS. 3 A systematic literature review will be undertaken to assess the properties of tools and instruments to assess components of the COS. Measurement properties, validity and reliability will be assessed using the Consensus-based Standards for the Selection of Health Measurement (COSMIN) and COMET guidance. 4 A stated preference survey will elicit the preferences of key stakeholders for the outcomes identified as important to measure in the COS. Focus groups and interviews with key stakeholder groups (people living with dementia, care partners, relevant health and social care professionals, researchers and policymakers) and a review of the literature will be undertaken to build a long list of outcomes. Two rounds of Delphi surveys will be used with key stakeholder groups. Statements for the Delphi surveys and participation processes will be developed and informed through substantial member involvement with people living with dementia and care partners. A consensus meeting will be convened with key participant groups to discuss the key findings and finalise the COS. A systematic literature review will be undertaken to assess the properties of tools and instruments to assess components of the COS. Measurement properties, validity and reliability will be assessed using the Consensus-based Standards for the Selection of Health Measurement (COSMIN) and COMET guidance. A stated preference survey will elicit the preferences of key stakeholders for the outcomes identified as important to measure in the COS. To the best of our knowledge, this study is the first to use a modified Delphi process to involve people living with dementia as a participant group. Though the study is confined to collecting data in the United Kingdom, use of the COS by researchers will enhance the comparability of studies evaluating non-pharmacological and community-based interventions. The study is registered on the COMET initiative, registered in 2014 at comet-initiative.org .
机译：该研究的主要目的是建立一个商定的标准化核心结果集（COS），用于评估痴呆症患者的非药物健康和社会护理干预措施。本研究借鉴了有效性试验的核心成果措施（COMET）的指导和方法，采用了四个阶段的混合方法设计：1焦点小组和与主要利益相关者小组的访谈（痴呆症患者，护理伙伴，相关健康以及社会护理专业人员，研究人员和政策制定者）​​，并对文献进行审查以建立一长串的结果。 2两轮Delphi调查将与主要利益相关者团体一起使用。德尔菲调查和参与过程的声明将通过大量成员与痴呆症患者和护理伙伴的参与来制定和告知。 3将进行系统的文献综述，以评估评估COS组成部分的工具和仪器的特性，并进行系统的文献综述，以评估关键特性，并评估测量特性，有效性和可靠性。使用基于共识的健康测量选择标准（COSMIN）和COMET指南进行评估。 4一项陈述性偏好调查将引起关键利益相关者对在COS中衡量很重要的结果的偏爱。焦点小组和与关键利益相关者群体的访谈（痴呆症患者，护理伙伴，相关的健康和社会护理专业人员，研究人员和研究人员）政策制定者）​​和文献回顾，以建立一长串的结果。主要利益相关者群体将使用两轮Delphi调查。德尔菲调查和参与过程的声明将通过大量成员与痴呆症患者和护理伙伴的参与来制定和告知。将与主要参与者小组召开共识会议，讨论主要发现并最终确定COS，将进行系统的文献综述以评估用于评估COS组成部分的工具和仪器的性能，并评估测量性能，有效性和可靠性。使用基于共识的健康测量选择标准（COSMIN）和COMET指南进行评估。既定的偏好调查将引起主要利益相关者对在COS中衡量很重要的结果的偏好。就我们所知，本研究是第一个使用改良的Delphi流程使痴呆症患者参与的研究组。尽管该研究仅限于在英国收集数据，但研究人员使用COS将增强评估非药物和社区干预措施的研究的可比性。该研究是在COMET计划中注册的，该计划于2014年在comet-initiative.org上注册。

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