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首页> 外文期刊>JMIR Research Protocols >Internet-Based Implementation of Non-Pharmacological Interventions of the 'People Getting a Grip on Arthritis' Educational Program: An International Online Knowledge Translation Randomized Controlled Trial Design Protocol
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Internet-Based Implementation of Non-Pharmacological Interventions of the 'People Getting a Grip on Arthritis' Educational Program: An International Online Knowledge Translation Randomized Controlled Trial Design Protocol

机译：基于互联网的“人们对关节炎的掌握”教育计划的非药物干预实施：国际在线知识翻译，随机对照试验设计协议

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Background Rheumatoid arthritis (RA) affects 2.1% of the Australian population (1.5% males; 2.6% females), with the highest prevalence from ages 55 to over 75 years (4.4-6.1%). In Canada, RA affects approximately 0.9% of adults, and within 30 years that is expected to increase to 1.3%. With an aging population and a greater number of individuals with modifiable risk factors for chronic diseases, such as arthritis, there is an urgent need for co-care management of arthritic conditions. The increasing trend and present shifts in the health services and policy sectors suggest that digital information delivery is becoming more prominent. Therefore, it is necessary to further investigate the use of online resources for RA information delivery. Objective The objective is to examine the effect of implementing an online program provided to patients with RA, the People Getting a Grip on Arthritis for RA (PGrip-RA) program, using information communication technologies (ie, Facebook and emails) in combination with arthritis health care professional support and electronic educational pamphlets. We believe this can serve as a useful and economical method of knowledge translation (KT). Methods This KT randomized controlled trial will use a prospective randomized open-label blinded-endpoint design to compare four different intervention approaches of the PGrip-RA program to a control group receiving general electronic educational pamphlets self-management in RA via email. Depending on group allocation, links to the Arthritis Society PGrip-RA material will be provided either through Facebook or by email. One group will receive feedback online from trained health care professionals. The intervention period is 6 weeks. Participants will have access to the Internet-based material after the completion of the baseline questionnaires until the final follow-up questionnaire at 6 months. We will invite 396 patients from Canadian and Australian Arthritis Consumers’ Associations to participate using online recruitment. Results This study will build on a pilot study using Facebook, which revealed promising effects of knowledge acquisition/integration of the evidence-based self-management PGrip educational program. Conclusions The use of online techniques to disseminate knowledge provides an opportunity to reduce health care costs by facilitating self-management of people with arthritis. Study design strengths include the incorporation of randomization and allocation concealment to ensure internal validity. To avoid intergroup contamination, the Facebook group page security settings will be set to “closed”, thus allowing only invited participants to access it. Study limitations include the lack of participant blinding due to the characteristics of this KT randomized controlled trial and a potential bias of recruiting patients only online, though this was proven effective in the previous pilot study. Trial Registration Australian New Zealand Clinical Trials Registry ACTRN12614000397617; http://www.anzctr.org.au/TrialSearch.aspx (Archived by WebCite at http://www.webcitation.org/6PrP0kQf8).
机译：背景类风湿关节炎（RA）影响澳大利亚人口的2.1％（男性1.5％;女性2.6％），从55岁到75岁以上的患病率最高（4.4-6.1％）。在加拿大，RA影响约0.9％的成年人，并且在30年内预计会增加到1.3％。随着人口老龄化和越来越多的人患有诸如关节炎等慢性疾病的可改变风险因素，迫切需要对关节炎状况进行共同护理管理。卫生服务和政策部门的增长趋势以及当前的变化表明，数字信息传递正变得越来越重要。因此，有必要进一步研究使用在线资源进行RA信息传递。目的目的是结合信息通信技术（例如Facebook和电子邮件），研究实施为RA患者提供的在线计划（RA的人们对关节炎的掌握）（PGrip-RA）计划的效果医疗保健专业支持和电子教育小册子。我们认为这可以作为一种有用且经济的知识翻译（KT）方法。方法该KT随机对照试验将使用前瞻性随机开放标签盲点设计，将PGrip-RA计划的四种不同干预方法与通过电子邮件接受RA中一般电子教育手册自我管理的对照组进行比较。根据小组分配，将通过Facebook或通过电子邮件提供关节炎协会PGrip-RA材料的链接。一组将在线接收训练有素的医疗保健专业人员的反馈。干预期为6周。参加者在完成基线调查表后将可以访问基于Internet的材料，直到在6个月后完成最终的跟踪调查表为止。我们将邀请来自加拿大和澳大利亚关节炎消费者协会的396位患者参加在线招聘。结果本研究将基于使用Facebook进行的一项初步研究，该研究显示了基于证据的自我管理PGrip教育计划的知识获取/整合的可喜效果。结论利用在线技术传播知识，为促进关节炎患者的自我管理提供了降低卫生保健成本的机会。研究设计的优势包括结合随机化和分配隐藏以确保内部有效性。为避免组间污染，Facebook组页面安全设置将设置为“封闭”，从而仅允许受邀参与者访问。研究局限性包括由于该KT随机对照试验的特点而导致参与者不知情，以及仅在线招募患者的潜在偏见，尽管在先前的先导研究中已证明有效。试验注册澳大利亚新西兰临床试验注册中心ACTRN12614000397617; http://www.anzctr.org.au/TrialSearch.aspx（由WebCite存档，网址为http://www.webcitation.org/6PrP0kQf8）。

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