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首页> 外文期刊>Journal of pain and symptom management. >Advance Care Planning in a Multicultural Family Centric Community: A Qualitative Study of Health Care Professionals', Patients', and Caregivers' Perspectives
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Advance Care Planning in a Multicultural Family Centric Community: A Qualitative Study of Health Care Professionals', Patients', and Caregivers' Perspectives

机译：在以多元文化为家庭中心的社区中进行预先护理计划：对卫生保健专业人员，患者和护理人员的观点进行的定性研究

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Context Advance care planning (ACP) has been shown to improve end-of-life care, but it was developed in the U.S., and most research has been conducted in western communities. Objectives We aimed to study the attitudes and perceptions of patients with life-limiting illnesses, informal caregivers, doctors, nurses, and medical social workers regarding ACP in a multicultural family centric community. Methods We conducted an explorative qualitative study, using focus groups and individual in-depth interviews. We used purposive sampling techniques to recruit 61 adults (15 doctors, 13 nurses, 5 medical social workers, 15 patients, and 13 caregivers) from multiple health care settings across the country. Results The participants are genuinely anxious about the implementation of ACP. They had positive and negative expectations of ACP. Many were confused about the legal framework for health care decision-making and expected ACP to be of limited value because family members, rather than the patient, were usually the key decision makers. Conclusion A nuanced approach to ACP that considers the family network is required in multicultural family centric communities. Policies should be reconciled to create a more consistent message that respects patients, the family, and is legally coherent. Further research could focus on adaptations of ACP to promote its acceptance in such communities.
机译：背景技术事前护理计划（ACP）可以改善临终护理，但它是在美国开发的，大多数研究是在西方社区进行的。目的我们旨在研究以生命为中心的疾病患者，非正式护理人员，医生，护士和医务社会工作者在以社区为中心的多元文化社区中对ACP的态度和看法。方法我们使用焦点小组和个人深入访谈进行了探索性定性研究。我们采用了有目的的抽样技术，从全国各地的多种医疗机构招募了61名成年人（15名医生，13名护士，5名医务社会工作者，15名患者和13名护理人员）。结果参与者对执行ACP确实感到焦虑。他们对ACP有正面和负面的期望。许多人对医疗保健决策的法律框架感到困惑，并期望ACP的价值有限，因为家庭成员而不是患者通常是关键的决策者。结论在多元文化的以家庭为中心的社区中，需要一种考虑家庭网络的细致入微的ACP方法。应协调政策，以创造出更加一致的信息，尊重患者，家庭并保持法律上的一致性。进一步的研究可能集中在适应ACP以促进其在此类社区中的接受。

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