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首页> 外文期刊>Journal of participatory medicine. >Participatory Methods to Engage Health Service Users in the Development of Electronic Health Resources: Systematic Review
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Participatory Methods to Engage Health Service Users in the Development of Electronic Health Resources: Systematic Review

机译：在电子医疗资源开发中使医疗服务用户参与的参与式方法：系统评价

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Background: When health service providers (HSP) plan to develop electronic health (eHealth) resources for health service users (HSU), the latter’s involvement is essential. Typically, however, HSP, HSU, and technology developers engaged to produce the resources lack expertise in participatory design methodologies suited to the eHealth context. Furthermore, it can be difficult to identify an established method to use, or determine how to work stepwise through any particular process. Objective: We sought to summarize the evidence about participatory methods and frameworks used to engage HSU in the development of eHealth resources from the beginning of the design process. Methods: We searched for studies reporting participatory processes in initial development of eHealth resources from 2006 to 2016 in 9 bibliographic databases: MEDLINE, EMBASE, CINAHL, PsycINFO, Emcare, Cochrane Library, Web of Science, ACM Guide to Computing Literature, and IEEE Xplore. From 15,117 records initially screened on title and for relevance to eHealth and early participatory design, 603 studies were assessed for eligibility on full text. The remaining 90 studies were rated by 2 reviewers using the Mixed Methods Appraisal Tool Version 2011 (Pluye et al; MMAT) and analyzed with respect to health area, purpose, technology type, and country of study. The 30 studies scoring 90% or higher on MMAT were included in a detailed qualitative synthesis. Results: Of the 90 MMAT-rated studies, the highest reported (1) health areas were cancer and mental disorders, (2) eHealth technologies were websites and mobile apps, (3) targeted populations were youth and women, and (4) countries of study were the United States, the United Kingdom, and the Netherlands. Of the top 30 studies the highest reported participatory frameworks were User-Centered Design, Participatory Action Research Framework, and the Center for eHealth Research and Disease Management (CeHRes) Roadmap, and the highest reported model underpinning development and engagement was Social Cognitive Theory. Of the 30 studies, 4 reported on all the 5 stages of the CeHRes Roadmap. Conclusions: The top 30 studies yielded 24 participatory frameworks. Many studies referred to using participatory design methods without reference to a framework. The application of a structured framework such as the CeHRes Roadmap and a model such as Social Cognitive Theory creates a foundation for a well-designed eHealth initiative that ensures clarity and enables replication across participatory design projects. The framework and model need to be clearly articulated and address issues that include resource availability, responsiveness to change, and the criteria for good practice. This review creates an information resource for future eHealth developers, to guide the design of their eHealth resource with a framework that can support further evaluation and development.
机译：背景：当医疗服务提供商（HSP）计划为医疗服务用户（HSU）开发电子医疗（eHealth）资源时，后者的参与至关重要。但是，通常，从事生产资源的HSP，HSU和技术开发人员缺乏适合eHealth环境的参与式设计方法方面的专业知识。此外，可能难以确定要使用的既定方法，或确定如何逐步执行任何特定过程。目的：我们试图总结从设计过程开始就用于使HSU参与开发eHealth资源的参与方法和框架的证据。方法：我们在9个书目数据库中搜索了报告从2006年到2016年电子卫生资源的初步开发的参与过程的研究：MEDLINE，EMBASE，CINAHL，PsycINFO，Emcare，Cochrane图书馆，Web of Science，ACM计算文学指南和IEEE Xplore 。从最初筛选的15117条记录中选择了标题，与eHealth和早期参与式设计相关的记录，对603项研究的全文资格进行了评估。剩下的90项研究由2位审阅者使用“ 2011年混合方法评估工具”（Pluye等人; MMAT）进行评分，并就健康领域，目的，技术类型和研究国家进行了分析。 30项MMAT得分达到90％或更高的研究被纳入详细的定性综合研究中。结果：在90项MMAT分级研究中，报告最多的（1）健康领域是癌症和精神疾病;（2）eHealth技术是网站和移动应用程序;（3）目标人群是青年和妇女;（4）国家研究对象是美国，英国和荷兰。在前30项研究中，报道最多的参与框架是以用户为中心的设计，参与行动研究框架和电子卫生研究与疾病管理中心（CeHRes）路线图，而支持发展和参与的报道最高的模型是社会认知理论。在30项研究中，有4项报道了CeHRes路线图的所有五个阶段。结论：前30项研究产生了24个参与框架。许多研究提到使用参与式设计方法而不涉及框架。诸如CeHRes路线图之类的结构化框架和诸如社会认知理论之类的模型的应用，为精心设计的eHealth计划奠定了基础，该计划可确保清晰度并能够在参与性设计项目之间进行复制。需要明确阐明框架和模型，并解决包括资源可用性，对变化的响应能力以及良好实践标准在内的问题。此次审查为未来的eHealth开发人员创建了一个信息资源，以可以支持进一步评估和开发的框架来指导其eHealth资源的设计。

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