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首页> 外文期刊>Journal of the Canadian Academy of Child and Adolescent Psychiatry >Exploring the Decisional needs of Parents with Children with ADHD and Disruptive and Aggressive Behaviour
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Exploring the Decisional needs of Parents with Children with ADHD and Disruptive and Aggressive Behaviour

机译：探索患有多动症和破坏性和攻击性行为的孩子的父母的决策需求

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Objective The aim of this qualitative study was to explore the decisional needs of parents of children with ADHD and disruptive and aggressive behaviour to inform the creation of a patient decision aid. Method A one-day meeting of researchers, community advocacy partners, and 11 parents of children (age range eight to 21) with aggressive and disruptive behaviour associated with a diagnosis of Attention Deficit Hyperactivity Disorder (ADHD), Oppositional Defiant Disorder or Conduct Disorder was held. This meeting consisted of a two-hour educational session on the assessment and management of aggressive and disruptive behaviour in children and patient decision aids, followed by two concurrent focus groups to determine the decisional needs of parents. NVivo11 software was used for the organization of the data. Results The results outline the broad themes and subthemes that emerged from the thematic analysis. These themes and subthemes include (a) decisional needs — treatment options and where to begin, availability, effectiveness of different treatment options, side effects, time, depth of information provided; (b) decision aid formats, and (c) accessibility – language, involvement of children, and dissemination. Conclusion The themes generated from the focus groups suggest that a patient decision aid for parents with children with ADHD and disruptive and aggressive behaviour should follow the general recommendations for best practices for the creation of patient decision aids. Specific information on the regional availability of non-medical treatments will be especially helpful for parents to navigate services and service providers. Consideration should be given as to how the concept of values clarification is introduced to families.
机译：目的这项定性研究的目的是探讨患有多动症的孩子的父母的决策需求，以及具有破坏性和攻击性的行为，以指导患者决策辅助工具的创建。方法为期一天的研究人员，社区倡导伙伴和11名儿童的父母（年龄在8至21岁之间）的会议具有侵略性和破坏性行为，与诊断为注意力缺陷多动障碍（ADHD），对立性违抗性障碍或品行障碍有关。保持。这次会议包括两个小时的教育会议，内容涉及儿童的侵略性和破坏性行为以及患者决策辅助工具的评估和管理，随后是两个并发的焦点小组，以确定父母的决策需求。 NVivo11软件用于组织数据。结果结果概述了主题分析中出现的广泛主题和子主题。这些主题和子主题包括：（a）决定性需求-治疗选择以及从何处开始，可用性，不同治疗选择的有效性，副作用，时间，所提供信息的深度; （b）决策援助形式，以及（c）无障碍获取–语言，儿童的参与和传播。结论从焦点小组得出的主题表明，对于患有多动症儿童且具有破坏性和攻击性行为的父母的患者决策辅助工具，应遵循有关创建患者决策辅助工具的最佳做法的一般建议。有关非药物治疗的地区可用性的特定信息将特别有助于家长浏览服务和服务提供商。应该考虑如何将价值澄清的概念引入家庭。

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