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Internet Interventions or Patient Education Web Sites? – Author’s Reply

机译:互联网干预或患者教育网站? –作者的回复

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We agree with Ritterband and Thorndike that the terminology and definitions in this field are confusing, and should be clarified and standardized. We would be happy to work with them and others on such a project.However, they are mistaken in their belief that the interventions used in our study were mostly patient education websites [1]. The interventions were carefully selected to fulfil the criteria for Interactive Health Communication Applications (IHCAs); namely that they were computer-based programs that combined health information with at least one interactive component, such as decision support, behavior change support or peer support. For example, heartcenteronline.com contains interactive self-assessment tools, as a support for behavior change, as well as online peer support, in the form of both personal stories and online chat groups. Similarly, alzheimersdisease.com contains interactive tools and online peer support, in the form of an e-mail "buddy" arrangement.This definition of an IHCA was provided in the paper, as were the criteria for choice of IHCA used in this study. As IHCA is a somewhat clumsy term, we preferred to use the more intuitive term “Internet interventions” to refer to web-based IHCAs.The other major point raised by Ritterband and Thorndike refers to our chosen methodology. It is the nature of qualitative research to work in-depth with small samples. We believe the combination of a qualitative research design allowing participating patients and caregivers to generate and define criteria, followed by a further validation exercise allowing them to check we have identified important criteria, is a particular methodological strength [2-3]. We did not set out to produce a list of generic criteria and in our analysis we were alert to the likelihood that patients and caregivers managing different chronic conditions would have different quality criteria. Instead, however, it was striking how similar needs and quality criteria were across groups.This is the basis for the generic quality criteria described in the paper and we question Ritterband and Thorndike’s assertion that an intervention for people with diabetes would self-evidently be completely different to one for insomnia. Our work concentrates on people with long-term conditions. Lorig has proposed that people with long-term conditions face three tasks (medical management, emotional management and role management) irrespective of the type of condition. These tasks require specific skills, such as problem solving, decision-making, finding and utilizing resources, forming partnerships with health professionals and taking action. Lorig postulates that enhancing self-efficacy, (i.e. a person’s belief in their capacity to carry out a specific action) is key to enhancing self-care skills [4]. Based on this theory, interventions designed to enhance self-care skills in people with long-term conditions should target these skills and aim to enhance self-efficacy. The specific content of an intervention will differ according to the condition targeted, but the theoretical basis, and hence the core components (e.g. tailored information, decision-support, action planning, emotional support) may well be similar.
机译:我们同意Ritterband和Thorndike的观点,该领域的术语和定义令人困惑,应予以澄清和标准化。我们很乐意与他们和其他人一起开展这样的项目。但是,他们误以为我们研究中使用的干预措施主要是患者教育网站[1]。精心选择干预措施,以符合交互式健康交流应用程序(IHCA)的标准;也就是说,它们是基于计算机的程序,将健康信息与至少一个交互式组件相结合,例如决策支持,行为更改支持或同级支持。例如,heartcenteronline.com包含交互式自我评估工具,以个人故事和在线聊天组的形式提供对行为更改的支持,以及在线对等支持。同样,alzheimersdisease.com包含交互工具和在线对等支持,形式为电子邮件“伙伴”安排。本文提供了IHCA的定义,以及本研究中选择IHCA的标准。由于IHCA有点笨拙,因此我们倾向于使用更直观的术语“ Internet干预”来指代基于Web的IHCA。Ritterband和Thorndike提出的另一个主要观点是我们选择的方法。定性研究的本质是深入研究小样本。我们认为,结合定性研究设计使参与研究的患者和护理人员能够生成和定义标准,然后再进行进一步的验证练习,使他们能够检查我们已经确定的重要标准,这是一种特殊的方法论优势[2-3]。我们没有开始列出一般标准,在我们的分析中,我们警惕了处理不同慢性病的患者和护理人员可能会有不同的质量标准。然而,相反的是,令人惊讶的是各组之间的需求和质量标准如何相似,这是本文所述通用质量标准的基础,我们质疑Ritterband和Thorndike的说法,即对糖尿病患者的干预显然是完全的不同于失眠。我们的工作集中于有长期条件的人。洛里格(Lorig)提出,不管病情类型如何,长期病患者都要面对三项任务(医疗,情感管理和角色管理)。这些任务需要特定的技能,例如解决问题,决策,寻找和利用资源,与卫生专业人员建立伙伴关系并采取行动。洛里格(Lorig)认为,提高自我效能感(即,人们相信自己采取特定行动的能力)是提高自我护理技能的关键[4]。基于此理论,旨在提高长期病患自我保健技能的干预措施应针对这些技能并旨在提高自我效能。干预的具体内容将根据目标条件而有所不同,但是理论基础和核心要素(例如,定制信息,决策支持,行动计划,情感支持)可能非常相似。

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