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首页> 外文期刊>Journal of medical Internet research >Adolescent Perspectives on the Use of Social Media to Support Type 1 Diabetes Management: Focus Group Study
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Adolescent Perspectives on the Use of Social Media to Support Type 1 Diabetes Management: Focus Group Study

机译：使用社交媒体支持1型糖尿病管理的青少年观点：焦点小组研究

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Background A majority of adolescents report the use of some form of social media, and many prefer to communicate via social networking sites. Social media may offer new opportunities in diabetes management, particularly in terms of how health care teams provide tailored support and treatment to adolescents with diabetes. Objective The aim of this study was to explore the experiences and perspectives of adolescents with type 1 diabetes on the feasibility of social media use as a tool to collaboratively manage their diabetes with their diabetes care team. Methods Focus groups of adolescents with type 1 diabetes were conducted in the Seattle metropolitan area in Washington State. Semistructured questions were used to elicit views around the preferred means of communication with the adolescents’ diabetes care team, how to best support diabetes self-management, and how social media could be used outside of the clinic setting by the diabetes care team to engage with adolescents with type 1 diabetes. Focus groups were audio recorded and transcribed verbatim. Qualitative content analysis was carried out, and emergent themes were subsequently mapped onto 4 domains of feasibility, which included acceptability, demand, implementation, and practicality. Results Participants included 45 adolescents with type 1 diabetes (mean age 15.9, SD 1.7 years; 58% male; diabetes duration mean 6.2, SD 3.6 years; 76% on insulin pumps; 49% wore continuous glucose monitors; 93% reported use of social media; 84% used smartphones as the primary means for social media access). A total of 7 major topics were identified and mapped onto areas consistent with our focus on feasibility. For acceptability and demand, participants expressed how communication over social media could help facilitate (1) improved communication outside of clinic visits to optimize diabetes management, (2) independence in diabetes self-management, (3) connection to other youth with diabetes for additional diabetes support, and (4) delivery of more timely and personalized care. Addressing implementation and practicality, participants shared the need to (1) ensure patient privacy, (2) maintain professional nature of provider-patient relationship, and (3) recognize that social media is not currently used for medical care by youth with diabetes. Conclusions Adolescents with type 1 diabetes expressed interest in the use of social media as a tool to support diabetes management and increase engagement with their diabetes care team. Specific implementation measures around privacy and professionalism should be considered when developing a social media intervention to facilitate communication between adolescents and care teams.
机译：背景技术大多数青少年报告使用某种形式的社交媒体，并且许多人更喜欢通过社交网站进行交流。社交媒体可能会为糖尿病管理提供新的机会，特别是在医疗团队如何为糖尿病青少年提供量身定制的支持和治疗方面。目的本研究旨在探讨1型糖尿病青少年的经验和观点，探讨使用社交媒体作为与糖尿病护理团队合作管理其糖尿病的工具的可行性。方法在华盛顿州西雅图市区对1型糖尿病青少年进行焦点小组研究。使用半结构化问题来围绕以下观点征求意见：与青少年糖尿病护理团队的首选沟通方式，如何最好地支持糖尿病自我管理以及糖尿病护理团队如何在诊所之外使用社交媒体进行互动1型糖尿病的青少年。焦点小组被录音并逐字记录。进行了定性内容分析，随后将新兴主题映射到4个可行性领域，包括可接受性，需求，实施和实用性。结果参加者包括45名1型糖尿病青少年（平均年龄15.9，SD 1.7岁;男性58％;糖尿病持续时间平均6.2，SD 3.6岁; 76％使用胰岛素泵; 49％穿着连续血糖监测仪; 93％报告使用社交媒体; 84％的人使用智能手机作为社交媒体访问的主要方式）。共确定了7个主要主题，并将其映射到与我们对可行性的关注相一致的领域。出于可接受性和需求，参与者表示了社交媒体上的交流如何帮助促进（1）在门诊就诊时改善交流，以优化糖尿病管理;（2）糖尿病自我管理的独立性;（3）与其他糖尿病青年的联系糖尿病支持，以及（4）提供更及时和个性化的护理。为了解决实施和实用性问题，与会人员分享了以下需求：（1）确保患者隐私，（2）保持医患关系的专业性质，以及（3）认识到糖尿病患者当前不使用社交媒体进行医疗护理。结论1型糖尿病青少年表示有兴趣使用社交媒体作为支持糖尿病管理和增加与糖尿病护理团队互动的工具。在开发社交媒体干预措施以促进青少年与护理团队之间的沟通时，应考虑围绕隐私和专业精神的具体实施措施。

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