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首页> 外文期刊>Journal of Clinical and Diagnostic Research >Study of Parental Perceptions on Health & Social Needs of Children with Neuro-Developmental Disability and It?s Impact on the Family
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Study of Parental Perceptions on Health & Social Needs of Children with Neuro-Developmental Disability and It?s Impact on the Family

机译：父母对神经发育障碍儿童的健康和社会需求的感知及其对家庭的影响的研究

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Introduction: The term Neuro Developmental Disorder (NDD) is used for conditions caused by a dysfunction in any part of the brain or nervous system, resulting in physical and/or psychological symptoms as a child develops. Family of children with NDD face many problems. It is very important to find them and create awareness so that gaps in essential services and supports can be decreased.Aim: To explore parental perceptions on health & social needs of children with NDD, to understand the impact of disability on the families having children with disability, and to find out the parental perceptions on availability of services for children with NDD and its utilization by families.Materials and Methods: The parents of 30 children with NDD were interviewed using a questionnaire and data elicited in these interviews were analysed. The questionnaire had preliminary information about parents and child with NDDs, socio-demographic profile of the family and the parental perceptions on health and social needs of their child having NDDs.Results: There were total 30 patients 17 were males and 13 were females. Most of the patients suffered from Cerebral Palsy (13 cases) and were diagnosed by General Practitioner (22 cases) while Developmental Neurologist/paediatrician had diagnosed remaining cases of NDD (8 cases). Most common disability for which parents were worried was inability to walk (17 cases). Common difficulties countered in daily care by parents were feeding and bathing (10 cases). Only 2 children were given assistance with tuition & psychologist (cases of ADHD). Most of the parents knew about special schools but didn?t know which place such facilities were available and none of the children were attending special schools. Twenty two parents said they have no plans for the future studies but wish that at least child learns to read & write. With help of spiritual power (doing prayers and pooja) 25 parents got courage to face the difficulties and discrimination. Two parents required antidepressants. Six Mothers had to quit their jobs so as to concentrate and give more time to their children. Experience with services provided was satisfactory in 17 cases, while 13 parents reported problem of arranging money, adjusting time for long travelling and regular follow-up.Conclusion: The findings can be utilized in developing supportive activities for families with disabled children. It addresses the need for new prospective of stigma reduction in our society. The study has found that the care givers of child with NDDs suffer from significant physical and mental stress, and their health should be taken into consideration. The study has found need of ?care givers` support group?. The professionals can help parents in establishing positive thinking towards care giving. There is need of provision of comprehensive and latest rehabilitation/ support resources & information.
机译：简介：术语神经发育障碍（NDD）用于因大脑或神经系统任何部分功能障碍而导致的状况，并随着儿童的成长而导致身体和/或心理症状。 NDD儿童的家庭面临许多问题。找到并提高认识非常重要，这样可以减少基本服务和支持方面的差距。目的：探索父母对NDD儿童健康和社会需求的看法，了解残疾对有NDS儿童的家庭的影响。材料和方法：对30名NDD儿童的父母进行了问卷调查，并分析了这些访谈中得出的数据。该调查表初步了解了患有NDD的父母和孩子，家庭的社会人口统计学资料以及父母对患有NDD的孩子的健康和社会需求的看法。结果：共有30例患者，男性17例，女性13例。大多数患者患有脑性瘫痪（13例），并由全科医生诊断（22例），而发育神经学家/儿科医生已诊断出剩余的NDD病例（8例）。父母担心的最常见的残疾是无法走路（17例）。父母在日常护理中遇到的常见困难是喂养和洗澡（10例）。只有2名儿童在学费和心理学家的帮助下（多动症）。大多数父母都知道特殊学校，但不知道在哪些地方可以使用这种设施，而且没有一个孩子上特殊学校。 22位家长说，他们没有未来的学习计划，但希望至少孩子学会阅读和写作。在灵性力量的帮助下（祈祷和祈祷），有25位父母有了勇气面对困难和歧视。两名父母需要抗抑郁药。六个母亲不得不辞掉工作，以集中精力并给孩子更多的时间。提供服务的经验在17例患者中令人满意，而13例父母报告了在安排钱财，调整长途旅行时间和定期随访方面的问题。结论：该发现可用于为残疾儿童家庭开展支持活动。它满足了对我们社会中减少污名的新前景的需求。研究发现，患有NDD的儿童的照护者患有严重的身心压力，应考虑他们的健康。研究发现需要“照护者支持小组”。专业人士可以帮助父母建立积极的关怀思想。需要提供全面和最新的康复/支持资源和信息。

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