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首页> 外文期刊>BMC Palliative Care >Spiritual care at the end of life in the primary care setting: experiences from spiritual caregivers - a mixed methods study
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Spiritual care at the end of life in the primary care setting: experiences from spiritual caregivers - a mixed methods study

机译：在初级保健环境中生活结束的精神护理：精神照顾者的经验 - 一种混合方法研究

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Spiritual care is an important aspect of palliative care. In the Netherlands, general practitioners and district nurses play a leading role in palliative care in the primary care setting. When they are unable to provide adequate spiritual care to their patient, they can refer to spiritual caregivers. This study aimed to provide an overview of the practice of spiritual caregivers in the primary care setting, and to investigate, from their own perspective, the reasons why spiritual caregivers are infrequently involved in palliative care and what is needed to improve this. Sequential mixed methods consisting of an online questionnaire with structured and open questions completed by 31 spiritual caregivers, followed by an online focus group with 9 spiritual caregivers, analysed through open coding. Spiritual caregivers provide care for existential, relational and religious issues, and the emotions related to these issues. Aspects of spiritual care in practice include helping patients find meaning, acceptance or reconciliation, paying attention to the spiritual issues of relatives of the patient, and helping them all to say farewell. Besides spiritual issues, spiritual caregivers also discuss topics related to medical care with patients and relatives, such as treatment wishes and options. Spiritual caregivers also mentioned barriers and facilitators for the provision of spiritual care, such as communication with other healthcare providers, having a relationship of trust and structural funding.. In the online focus group, local multidisciplinary meetings were suggested as ideal opportunities to familiarize other healthcare providers with spirituality and promote spiritual caregivers’ services. Also, structural funding for spiritual caregivers in the primary care setting should be organized. Spiritual caregivers provide broad spiritual care at the end of life, and discuss many different topics beside spiritual issues with patients in the palliative phase, supporting them when making medical end-of-life decisions. Spiritual care in the primary care setting may be improved by better cooperation between spiritual caregiver and other healthcare providers, through improved education in spiritual care and better promotion of spiritual caregivers’ services.
机译：精神护理是姑息治疗的一个重要方面。在荷兰，一般从业者和区护士在初级保健环境中占姑息治疗中的主导作用。当他们无法向患者提供充足的精神照顾时，他们可以参考精神照顾者。本研究旨在概述初级保健环境中精神照顾者的实践，并从自己的角度来调查精神照顾者不经常参与姑息治疗以及改善这一点所需的原因。由31个精神护理人员完成的具有结构化和开放问题的在线问卷组成的顺序混合方法，其次是一家在线焦点小组，通过开放编码分析。精神照顾者为存在的存在，关系和宗教问题提供关心，以及与这些问题有关的情感。精神护理的方面在实践中包括帮助患者找到意义，接受或和解，关注患者亲属的精神问题，并帮助他们告别告别。除了精神问题外，精神照顾者还讨论与医疗患者和亲属有关的主题，如治疗愿望和选择。精神照顾者还提到了提供精神护理的障碍和促进者，例如与其他医疗保健提供者的沟通，具有信任和结构资金的关系。在网上焦点集团中，当地多学科会议被认为是熟悉其他医疗保健的理想机会有灵性和促进精神照顾者服务的提供者。此外，应组织初级保健环境中精神照料的结构资金。精神照顾者在生命结束时提供广泛的精神照顾，并在姑息期间与患者的精神问题讨论了许多不同的主题，在制作医疗期末决策时支持它们。通过改善精神护理教育和改善精神照顾性服务的改善教育，可以改善初级保健环境中的精神护理，可以提高精神照顾者和其他医疗保健提供者。

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