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首页> 外文期刊>BMC Pediatrics >Long-time sickness absence among parents of pre-school children with cerebral palsy, spina bifida and down syndrome: a longitudinal study
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Long-time sickness absence among parents of pre-school children with cerebral palsy, spina bifida and down syndrome: a longitudinal study

机译：学龄前儿童父母患儿的长期疾病缺席，脑瘫，脊柱珠氏菌和下综合征：纵向研究

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Background Taking care of a child with special needs can be draining and difficult and require a lot of parental time and resources. The present study investigated the long-term sickness absence of parents who have children with spina bifida, cerebral palsy and Down syndrome compared to that of parents without a child with special needs. Methods The sample consisted of primiparae women who gave birth between 2001 and 2005 and the fathers of the children ( N =?202,593). Data were obtained from the Medical Birth Registry of Norway (MBRN), which is linked to the Central Population Register, education and income registries and Historical Event Database (FD-Trygd) of Statistics Norway (SSB). The linkage data provide longitudinal data, together with annual updates on children and their parents. Statistical analyses were performed using difference-in-difference (DD) study design. Results Caring for a child with special needs affected maternal sickness absence, particularly in the first year after the birth. The level of sickness absence of mothers caring for a child with spina bifida and cerebral palsy was greater than that of mothers caring for a child with Down syndrome. In contrast, the sickness absence of fathers caring for a child with special needs was, on average, comparable to that of fathers without a special-needs child in the post-birth period. Conclusions Caring for a child with special needs affected the long-term sickness absence of mothers but not fathers. The findings indicate that the burden of care in the case of children with special needs falls especially on the mother.
机译：照顾有特殊需要的孩子的背景可以耗尽和困难，需要大量的父母时间和资源。目前的研究调查了与没有特殊需求的父母的父母，患有脊柱裂藻，脑瘫和下降综合征的父母的长期疾病。方法该样本由2001年至2005年和儿童的父亲分娩（n = 202,593）之间的priparae妇女组成。数据来自挪威（MBRN）的医疗出生登记处，与中央人口登记，教育和收入登记处以及统计统计数据库（FD-TUSTGD）联系起来的挪威（SSB）。联动数据提供纵向数据，以及儿童及其父母的年度更新。使用差异差异（DD）研究设计进行统计分析。结果为特殊需求的儿童照顾母婴缺席，特别是在出生后的第一年。疾病的疾病水平缺乏关怀患有脊柱裂和脑瘫的孩子的疾病大于患有唐氏综合症的孩子的母亲。相比之下，平均而言，父亲对具有特殊需求的孩子的疾病是与未经特殊需要的孩子在出生后时期的父亲相当。结论照顾有特殊需求的孩子影响了母亲的长期疾病，但不是父亲。调查结果表明，在特殊需求的儿童的情况下，特别是在母亲身上的护理负担。

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