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首页> 外文期刊>BMC Pediatrics >Rigour and Rapport: a qualitative study of parents’ and professionals’ experiences of joint agency infant death investigation
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Rigour and Rapport: a qualitative study of parents’ and professionals’ experiences of joint agency infant death investigation

机译：严谨与融洽：父母和专业人士的联合代理婴幼儿死亡调查的定性研究

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Background In many countries there are now detailed Child Death Review (CDR) processes following unexpected child deaths. CDR can lead to a fuller understanding of the causes for each child’s death but this potentially intrusive process may increase the distress of bereaved families. In England, a joint agency approach (JAA) is used where police, healthcare and social services investigate sudden child deaths together and a key part of this is the joint home visit (JHV) where specialist police and paediatricians visit the home with the parents to view the scene of death. This study aimed to learn of bereaved parents’ experiences of JAA investigation following Sudden Unexpected Death in Infancy (SUDI). Methods This was a qualitative study of joint agency investigation of SUDI by specialist police, healthcare and social services including case note analysis, parental questionnaires, and in-depth interviews with parents and professionals. Families were recruited at the conclusion of the JAA. Data were analysed using a Framework Approach. Results 21/113 eligible families and 26 professionals participated giving theoretical saturation of data. There was an inherent conflict for professionals trying to both investigate deaths thoroughly as well as support families. Bereaved parents appreciated the JAA especially for the information it provided about the cause of death but were frustrated with long delays waiting to obtain this. Many parents wanted more emotional support to be routinely provided. Most parents found the JHV helpful but a small minority of mothers found this intensely distressing. In comparison to JHVs, when police visited death scenes without paediatricians, information was missed and parents found these visits more upsetting. There were issues with uniformed non-specialist police traumatising parents by starting criminal investigations and preventing parents from accessing their home or collecting vital possessions. Conclusions Overall most parents feel supported by professionals during the JAA; however there is scope for improvement. Paediatricians should ensure that parents are kept updated with the progress of the investigations. Some parents require more emotional support and professionals should assist them in accessing this.
机译：在许多国家的背景下，现在有意外的儿童死亡后的详细儿童死亡审查（CDR）流程。 CDR可能导致对每个孩子死亡的原因更全面了解，但这种潜在的侵入性过程可能会增加失去亲人家庭的痛苦。在英格兰，联合机构方法（JAA）被使用在警察，医疗保健和社会服务突然的儿童死亡，其中一个关键部分是专家警察和儿科医生与父母访问家庭的联合家庭访问（JHV）查看死亡现场。本研究旨在了解婴儿疾病（SUDI）突发发生意外死亡后JAA调查的失去父母的经验。方法这是专家警察，医疗保健和社会服务在内的苏迪联合机构调查的定性研究，包括案件注释分析，父母问卷和与父母和专业人士的深入访谈。家庭在JAA的结束时招募了家庭。使用框架方法进行分析数据。结果21/113符合条件的家庭和26名专业人士参加了对数据的理论饱和度。专业人士试图彻底调查死亡以及支持家庭，存在固有的冲突。亲人的父母赞赏jaa，特别是关于它提供了关于死因的信息，但令人沮丧，但在等待获得这方面的长期延误感到沮丧。许多父母希望经常提供更多的情感支持。大多数父母发现了JHV有用，但少数少数母亲发现这种强烈痛苦。与JHV相比，当警察访问没有儿科医生的死亡场景时，错过了信息，父母发现这些访问更加令人不安。通过开始刑事调查并阻止父母进入他们的家或收集重要财产来解决父母的制服的非专家警察问题。结论整体大多数父母在JAA期间的专业人士都会受到支持;然而，有改进的范围。儿科医生应确保父母保持更新，并随着调查的进展而更新。有些父母需要更多的情感支持，专业人士应该帮助他们访问这一点。

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