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首页> 外文会议>International Conference on eHealth, Telemedicine, and Social Medicine >A Qualitative Study of Parents' Experiences of Information Exchange between the Tertiary Health Service and the Child's Local Support Team using Videoconference
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A Qualitative Study of Parents' Experiences of Information Exchange between the Tertiary Health Service and the Child's Local Support Team using Videoconference

机译：使用ViewOCOREFERS对父母交流信息交流信息交流经验的定性研究

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In this study, four children with rare, epileptic condition including intellectual disability were interdisciplinary assessed in the National Center for Epilepsy (SSE). The results of the assessments were communicated to the children's local support service using videoconference (VC) with the parents present. The purpose for this study was to obtain a deeper insight into parents' experiences with information exchange using VC. Methods: In-depth interviews were performed with five parents within a week after the VC. The generated material was analyzed with a thematic hermeneutic research approach. Results: The local participation increased from 2-6 in traditional face-to-face meetings to up to 22 participants in the VCs. The parents described how the increased participation ensured a direct, oral information exchange that prevented treatment misunderstandings. The parents were relieved from the responsibility to inform all professionals involved in the local community. In addition the parents suggested this increased the multidisciplinary collaboration and facilitated a comprehensive approach to the children's complex situations. The parents experienced increased user-involvement in the process of arranging the VC compared to traditional face-to-face consultants. Some parents had started to initiate VC themselves. Conclusion: VC was considered a more potent tool for information exchange between providers than face-to-face meetings due to the increased local participation and that everyone was assured to get the same information simultaneously. However a crucial prerequisite seem to be that the professionals from the tertiary health service had clinical knowledge of the child and tailored the information exchanged according to each child and family's needs.
机译：在这项研究中，包括识别疾病的四个患儿，包括智力残疾，在国家癫痫中心（SSE）中的跨学科评估。评估的结果使用父母存在的视频会议（VC）传达给儿童本地支持服务。本研究的目的是利用VC了解父母对父母的经验深入了解。方法：在VC后一周内与五名父母进行深入访谈。通过主题诠释学研究方法分析所产生的材料。结果：当地参与从传统面对面会议的2-6增加到高达22名VCS的参与者。父母描述了增加的参与如何确保直接，口头信息交换，防止治疗误解。父母从责任中解脱出来，通知所有参与当地社区的专业人士。此外，父母建议增加多学科合作，并为儿童复杂情况提供了全面的方法。与传统面对面顾问相比，父母在安排VC的过程中经历了增加的用户参与。有些父母开始自己启动VC。结论：VC被认为是提供者之间的信息交流的更有效的工具，而不是面对面的会议，由于当地参与增加，每个人都被保证同时获得相同的信息。然而，至关重要的先决条件似乎是第三级卫生服务的专业人士对孩子的临床知识并根据每个孩子和家庭的需求量身定制信息交换的信息。

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