The Lung Life of a Cystic Fibrosis Patient: A Patient and Physician Perspective

Gabriella Balasa; Nauman Chaudary

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The Lung Life of a Cystic Fibrosis Patient: A Patient and Physician Perspective

机译：囊性纤维化患者的肺部寿命：患者和医师的观点

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This article is co-authored by a patient living with cystic fibrosis, and her treating physician. The first section of this commentary article is authored by a patient, who describes their experience of living with cystic fibrosis. The following section is authored by the patient’s physician, who discusses the management of cystic fibrosis in the context of the patient’s experiences.

机译：本文由患有囊性纤维化的患者共同撰写，以及她的治疗医师。该评论文章的第一部分由患者撰写，他描述了他们患有囊性纤维化的生活经验。以下部分由患者的医生撰写，他讨论了患者经验的背景下的囊性纤维化的管理。

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《Pulmonary therapy.》 |2020年第2期|共9页
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Gabriella Balasa; Nauman Chaudary;
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Cystic fibrosisPatient experience;

机译：囊性纤维化患者体验;

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1. Cystic fibrosis physicians’ perspectives on the timing of referral for lung transplant evaluation: a survey of physicians in the United States [J] . Kathleen J. Ramos, Ranjani Somayaji, Erika D. Lease, BMC Pulmonary Medicine . 2017,第1期

机译：囊性纤维化医师对肺移植评价转诊时机的观点：美国医师调查
2. Proteomic analysis of nasal cells from cystic fibrosis patients and non-cystic fibrosis control individuals: Search for novel biomarkers of cystic fibrosis lung disease. [J] . Roxo Rosa M, da Costa G, Luider TM, Proteomics . 2006,第7期

机译：囊性纤维化患者和非囊性纤维化控制个体鼻细胞的蛋白质组学分析：寻找囊性纤维化肺病的新生物标记。
3. Burkholderia Gladioli a?? A Predictor of Poor Outcome in Cystic Fibrosis Patients Who Receive Lung Transplants? A Case of Locally Invasive Rhinosinusitis and Persistent Bacteremia in a 36-Year-Old Lung Transplant Recipient with Cystic Fibrosis [J] . Quon Bradley S, Reid James D, Wong Patrick, Canadian journal of gastroenterology & hepatology. . 2011,第4期

机译：剑兰伯克霍尔德氏菌a ??接受肺移植的囊性纤维化患者预后不良的预测因素？囊性纤维化36岁肺移植受者局部浸润性鼻-鼻窦炎和持续性细菌血症的一例
4. OMICS approaches to reveal Burkholderia cenocepacia adaptive strategies to long-term residence in the lungs of cystic fibrosis patients under antibiotic therapy [C] . Madeira Andreia, Mira Nuno P, Santos Pedro M, 1st Portuguese Meeting in Bioengineering . 2011

机译：OMICS方法揭示在抗生素治疗下囊性纤维化患者长期驻留在肺泡中的伯克霍尔德菌种的适应策略
5. Comparing Patient Engagement and Patient Advocacy Activities and Measuring Preferred Roles in Medical Decision Making among Cystic Fibrosis Patients, Caregivers, Family Members and Patient Advocates [D] . Saliba, Daniel . 2019

机译：比较患者参与和患者倡导活动，衡量囊性纤维化患者，护理人员，家庭成员和患者倡导者的医学决策中的优先作用
6. Cystic fibrosis physicians’ perspectives on the timing of referral for lung transplant evaluation: a survey of physicians in the United States [O] . Kathleen J. Ramos, Ranjani Somayaji, Erika D. Lease, 2017

机译：囊性纤维化医师对肺移植评估转诊时机的看法：美国医师调查
7. The Lung Life of a Cystic Fibrosis Patient: A Patient and Physician Perspective [O] . Gabriella Balasa, Nauman Chaudary 2020

机译：囊性纤维化患者的肺部寿命：患者和医师的观点

The Lung Life of a Cystic Fibrosis Patient: A Patient and Physician Perspective

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