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首页> 外文期刊>Therapeutic advances in drug safety. >‘I think this medicine actually killed my wife’: patient and family perspectives on shared decision-making to optimize medications and safety
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‘I think this medicine actually killed my wife’: patient and family perspectives on shared decision-making to optimize medications and safety

机译:“我认为这种药实际上杀了我的妻子”:患者和家庭观察共同决策,以优化药物和安全

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Background: This study explored the perspectives and experiences from patients and familiesaround how patient/family preferences and priorities are considered in medication-relateddiscussions and decisions within the healthcare system.Methods: We conducted a qualitative study using focus groups with residents of SouthernOntario and British Columbia (N = 16). Three focus groups were conducted using a semistructured focus group guide. The audiotaped focus group discussions were transcribedverbatim. A thematic analysis, using inductive coding, was completed.Results: A total of three main themes [and several sub-themes (and sub-sub-themes)]emerged from the data: patient and family expertise [lived experience, information expert, andperceived expert roles (patient/family, healthcare provider)], perceived patient-centredness(relationship qualities of healthcare provider and assumptions about patients), and system (time,coordination and communication, and culture). Stories told by participants helped to clarify therelationships between the themes and sub-themes, leading to, what we understand as shareddecision-making around medications and subsequent health outcomes.Conclusions: Our findings showed that shared decision-making resulted from both recognitionand integration of the personal expertise of the patient and family in medications, and perceivedpatient-centredness. This is broadly consistent with the current conceptualization of evidencebased medicine. The stories told highlight the complex, dynamic, and nonlinear nature of shareddecision-making for medications, and that patient priorities are not as integrated into shareddecision-making about medications as we would hope. This suggests the need for developinga systematic process to elicit, record, and integrate patient preferences and priorities aboutmedications to create space for a more patient-centred conversation.
机译:背景:本研究探讨了患者和家庭的视角和经验,如何在医疗保健系统中审议患者/家庭偏好和优先事项的患者/家庭偏好和优先事项。方法:我们使用奥特内尔和不列颠哥伦比亚省居民的焦点小组进行了一个定性研究(n = 16)。使用Semilluctued Focus Group指南进行三个焦点组。录音对焦小组讨论是TranscribedVerbatim。完成了使用电感编码的主题分析。结果:从数据中出现了三个主要主题[和几个子主题(和子主题)]:患者和家庭专业知识[Live Experial专家,信息专家,安永专家角色(患者/家庭,医疗保健提供者)],感知患者百分点(医疗保健提供者的关系质量和关于患者的假设),以及系统(时间,协调和沟通和文化)。参与者告诉的故事有助于澄清主题和子主题之间的主题,导致我们所理解的是含有药物和随后的健康成果。结论:我们的调查结果表明,共同决策从承认和整合都是共同的决策。药物和家庭的个人专业知识,以及感知的百分之纪。这与当前概念化的概念化的概念化了。这些故事告诉突出了用于药物的分享,动态和非线性性质,并且患者优先事项并不像我们希望的那样融入疗程的分享。这表明需要发展,记录和整合患者偏好和有关医疗的优先事项,以创造更多患者以患者为中心的对话创造空间。

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