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首页> 外文期刊>Health expectations: an international journal of public participation in health care and health policy >‘Sick and tired’: Patients reported reasons for not participating in clinical psychiatric research
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‘Sick and tired’: Patients reported reasons for not participating in clinical psychiatric research

机译：'生病和疲惫'：患者报告的原因不参与临床精神病学研究

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Background Meaningful and generalizable research depends on patients' willingness to participate. Studies often fail to reach satisfactory representativeness. Objective This paper aims to investigate reasons for not participating in research among young adult patients with psychiatric illness. Method A quantitative cross‐sectional study was performed based on questionnaires reported on by 51 psychiatric patients (14 males, 35 females and two unspecified) who had previously declined participation in an ongoing research project. Thereafter, a qualitative interview with subsequent content analysis was conducted with ten additional patients (five males, five females). Results The questionnaires indicate being ‘too tired/too sick to participate’ as the most common barrier. Lack of time and fear of needles were other common barriers. Lack of trust or belief in the value of research was less inhibitive. In the interviews, disabling psychiatric symptoms were confirmed as the main reason for not participating. Several potential ways to increase participation were identified, such as simplification of procedures and information as well as providing rewards and feedback, and building relationships before asking. Conclusion This study is unusual as it focuses on the group of young people attending psychiatry outpatient clinics we know very little about – those who do not partake in research. Our results indicate that fatigue and sickness reduce research participation and identify factors that may facilitate enrolment of this important group.
机译：背景技术有意义和更广泛的研究取决于患者的参与意愿。研究通常无法达到满意的代表性。目的本文旨在调查未参与青年成人患者的研究的原因。方法基于由51名精神病患者（14名男性，35名女性和两个未指明）报告的问卷进行定量横截面研究，他们先前曾在持续的研究项目中拒绝过参加。此后，用10名患者（五名男性，五名女性）进行了随后内容分析的定性访谈。结果问卷表明，“太累/太病了，参与”是最常见的障碍。缺乏时间和对针的恐惧是其他常见的障碍。缺乏信任或信仰的研究价值较少抑制。在采访中，禁用精神症状被证实为未参与的主要原因。确定了几种增加参与的潜在方法，例如简化程序和信息，以及在询问之前提供奖励和反馈，以及建立关系。结论这项研究是不寻常的，因为它专注于参加精神科门诊诊所的年轻人，我们非常了解 - 那些不参与研究的人。我们的结果表明，疲劳和疾病减少了研究参与，并确定了可能促进这一重要组的入学的因素。

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