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首页> 外文期刊>BMC Cancer >Mixed methods assessment of impact on health awareness in adult childhood cancer survivors after viewing their personalized digital treatment summary and follow-up recommendations
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Mixed methods assessment of impact on health awareness in adult childhood cancer survivors after viewing their personalized digital treatment summary and follow-up recommendations

机译：混合方法在观看其个性化数字治疗摘要和后续建议后，对成人儿童癌症幸存者的影响对健康意识的影响

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The survival rate after childhood cancer has improved to 80%. The majority of childhood cancer survivors (CCS) will experience late complications which require follow up care, including access to their individual cancer treatment summary. The need to understand CCS needs and preferences in terms of ways to receive information e.g. digitally, becomes important. This study aims to through a mixed methods approach a) examine how CCS’ health awareness was impacted by viewing their personalized digital treatment summary and follow-up recommendations, b) explore E health literacy, and c) determine self-reported survivorship experiences and health care usage. Survivors with a recent visit to the Late effects clinic were eligible for the study (n?=?70). A representative sample of primary diagnoses were invited (n?=?28). 16 CCS were enrolled. Recent medical visits, e health literacy and impressions of the digital treatment summary were assessed by a survey in conjunction with viewing their digital treatment summary on a computer screen. Their experience of reading and understanding their digital treatment summary in the context of their health related survivorship experiences were assessed in focus groups. The transcribed data was analyzed with conventional qualitative content analysis. The self-reported medical problems largely reflected that, only 6,3% reported no cancer-related reasons for seeking medical attention. Of the medical specialists, the primary care physician was the most frequently visited specialist (68.8%). High E health literacy was not associated with treatment features but with educational level (p?=?0.003, CI: 3.9–14.6) and sex (p?=?0.022, CI: ??13.6- -1.3). All survivors graded the digital treatment summary above average in terms of being valuable, agreeable and comprehensive. The focus group interviews identified three themes: 1) The significance of information, 2) The impact of awareness; and 3) Empowerment. Reading the treatment summaries furthered the survivors understanding of their health situation and consequently aided empowerment. A digital treatment summary, provided by knowledgeable health care professionals, may increase the self-managed care and adherence to follow-up recommendations. Further insights into e health literacy in larger samples of CCS may determine to what extent health-related information can be communicated via digital resources to this at risk population.
机译：儿童癌症后的存活率提高到80％。大多数儿童癌症幸存者（CCS）将经历后期并发症，需要进行后续护理，包括获得其个体癌症治疗摘要。在接收信息方面，需要了解CCS需求和偏好。数字化，变得重要。本研究旨在通过混合方法方法a）审查CCS的健康意识如何通过观察其个性化数字治疗摘要和后续建议，b）探索E健康识字和c）确定自我报告的生存经历和健康护理用法。幸存者最近访问后期疗效诊所有资格参考研究（n？=？70）。邀请了主要诊断的代表性样本（n？=？28）。 16 CCS注册。一项调查结合在计算机屏幕上查看其数字治疗摘要，评估了最近的医疗访问，E健康识字和数字待遇摘要的印象。在焦点小组中评估了他们在健康相关生存经验的背景下阅读和理解其数字治疗摘要的经验。通过常规定性含量分析分析转录数据。自我报告的医学问题在很大程度上反映出来，只有6,3％报告没有癌症有关的癌症问题。医学专家，初级保健医师是最常见的专家（68.8％）。高E健康素养与治疗特征无关，但具有教育程度（p？= 0.003，CI：3.9-14.6）和性别（P？= 0.022，CI：?? 13.6-1.3）。所有幸存者都以高价，令人愉快和全面的方式分级了数字处理摘要。焦点组访谈确定了三个主题：1）信息的意义，2）意识的影响; 3）赋权。阅读治疗摘要进一步了解幸存者对其健康状况的理解，从而得到赋予赋权。知识渊博的医疗保健专业人员提供的数字待遇摘要可能会增加自我管理的护理和遵守后续建议。在较大的CCS样本中进一步了解E健康识字率可以确定与风险群体的数字资源可以通过数字资源传达与健康相关信息的程度。

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