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首页> 外文期刊>Journal of Patient Experience >Patient Stories Can Make a Difference in Patient-Centered Research Design
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Patient Stories Can Make a Difference in Patient-Centered Research Design

机译：患者故事可以对患者为中心的研究设计产生差异

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Amid increasing interest in improving the patient-centeredness of research, new forms of engagement are emerging that enable researchers to get input from community members on research goals, methods, and implementation. This input often includes stories, which are useful for understanding lived experiences of illness and encounters with health care organizations, and for locating these experiences within larger meta-narratives of specific communities. We analyzed the stories in transcripts of 13 Community Engagement Studios and identified 4 major functions that the stories served in the sessions. Major functions included: (1) establishing mutual understanding, (2) adding expansion and depth, (3) characterizing abstract concepts, and (4) providing context for experience, with the latter being the most frequent. We assert that stories can serve to better communicate the complex contexts of patient experiences, helping to align research priorities and research design with community interests, leading to more patient-centered innovations in clinical practice.
机译：在提高改善患者的研究中心的兴趣时，新的婚姻形式正在出现，使研究人员能够从社区成员获得研究目标，方法和实施。此输入通常包括故事，可用于了解疾病的生活经验和遇到医疗保健组织，以及在特定社区的较大元叙述中定位这些经验。我们分析了13个社区参与工作室的成绩单中的故事，并确定了会议中服务的故事的4个主要功能。主要功能包括：（1）建立相互了解，（2）添加扩展和深度，（3）表征抽象概念，（4）为经验提供背景，后者是最常见的。我们断言，故事可以有助于更好地传达患者体验的复杂背景，有助于将研究优先事项和研究设计与社区兴趣保持一致，导致临床实践中更为患者的创新。

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