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Understanding health, culture, and empowerment in a disability context

机译:在残疾背景下了解健康,文化和赋权

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Purpose – The purpose of this paper is to understand the different kinds of health-promotion activities undertaken by Chinese individuals in managing their disability from multiple sclerosis (MS). Design/methodology/approach – The theory of control behavior was used in this study to understand the different kinds of primary and secondary health-coping strategies used by participants and their impact on intra- and inter-personal empowerments. Using semi-structured interviews, interpretive phenomenology was used to elicit and analyze attitudes and behaviors of Chinese participants' management of MS. Findings – Unlike previous studies which only emphasized the tangible aspects of physical health, the current paper suggests the importance of viewing health benefits in a more holistic manner. It was clear from the Chinese participants that “disability” and “healthy” were not viewed as two separate concepts. Being healthy does not mean an absence of disease but as role functioning, energy and vitality, social relationships, and emotional well-being. The exploratory paper also found that empowerment outcomes involved an interaction of both the inter- and intra-personal components and, at the same time, were driven by primary and secondary control-related preferences. Research limitations/implications – Future research should include individuals with other disabilities and different demographic and socio-cultural characteristics to confirm the generalizability of the findings uncovered here. Practical implications – The impact of culture and contextual/situational variables on individual's choice of primary and secondary control strategies has important implications for developing health strategies across different ethnic minority groups. Originality/value – The results provide support for the view that there are two dimensions to the process of patient empowerment. Rather than emphasizing primary control strategies, individuals can empower themselves by maintaining a balance between primary and secondary control strategies with respect to their health-related goals.
机译:目的–本文的目的是了解中国人为管理多发性硬化症(MS)的残疾而进行的各种健康促进活动。设计/方法/方法-在本研究中使用控制行为的理论来理解参与者使用的不同类型的主要和次要健康应对策略及其对人际和人际交往能力的影响。使用半结构化访谈,使用解释现象学来引发和分析中国参与者管理MS的态度和行为。研究结果–与以前的研究仅强调身体健康的实际情况不同,本论文提出了更全面地了解健康益处的重要性。从中国参与者看来,“残疾”和“健康”并没有被视为两个独立的概念。健康并不意味着没有疾病,而是角色扮演,活力与活力,社会关系和情感幸福。该探索性论文还发现,赋权结果涉及人际和人际两方面因素的相互作用,并且同时受主要和次要控制相关偏好的驱动。研究的局限性/含意-未来的研究应包括具有其他残疾和不同人口统计学和社会文化特征的个人,以确认此处发现的发现的一般性。实际意义–文化和上下文/情境变量对个人选择一级和二级控制策略的影响,对制定不同少数民族健康策略具有重要的意义。原创性/价值–结果为以下观点提供了支持:患者赋权过程有两个方面。个人无需强调主要控制策略,而是可以通过在与健康相关的目标方面保持主要控制策略和次要控制策略之间的平衡来增强自己的能力。

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