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The Use of Genetic Testing Information in the Insurance Industry: An Ethical and Societal Analysis of Public Policy Options

机译:基因测试信息在保险业中的使用:公共政策选择的伦理和社会分析

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Informed by a search of the literature about the usage of genetic testing information (GTI) by insurance companies, this paper presents a practical ethical analysis of several distinct public policy options that might be used to govern or constrain GTI usage by insurance providers. As medical research advances and the extension to the Human Genome Project (2016, https://en.wikipedia.org/wiki/Human_Genome_Project_-_Write) moves to its fullness over the next decade, such research efforts will allow the full synthesis of human DNA to be connected to predictive health dispositions. As testing costs fall, there will be ever more pressure for citizens to disclose GTI. Genetic testing information is integral to future medical care because it can be used to better assess individually tailored medical therapies as well as to allow a more informed risk analysis by the insurance industry, which in some countries such as the USA underwrites a majority of citizen medical expenses. As discussed in this examination, the revelation of people's uniquely personal GTI to insurers has enormous societal implications. The major contribution of the paper is to offer policy makers and concerned citizens a nuanced articulation of the basic options to regulate GTI, with a special consideration for ethical fairness and equity. As genetic-based medicine blossoms and pressures to reduce healthcare costs increase, there will be an ever greater impetus for countries to revisit their genetic testing policies. Organizations and policy makers striving to create GTI oversights perceived to be both fair and effective need to be aware of the ethical perspectives discussed in this paper.
机译:通过对有关保险公司使用基因检测信息(GTI)的文献进行搜索,本文提供了对几种不同的公共政策选择的实用伦理分析,这些选择可能会用于管理或限制保险提供者使用GTI。随着医学研究的进步和人类基因组计划的扩展(2016年,https://en.wikipedia.org/wiki/Human_Genome_Project_-_Write)在未来十年内全面发展,此类研究工作将使人类的全面合成成为可能。 DNA与预测性健康倾向有关。随着测试成本的下降,市民公开GTI的压力将越来越大。基因检测信息是未来医疗保健不可或缺的组成部分,因为它可用于更好地评估个性化定制的医疗疗法以及允许保险业进行更明智的风险分析,在美国等一些国家,保险业承保了大多数公民医疗服务花费。正如本次考试所讨论的那样,人们独特的个人GTI对保险公司的启示对社会具有巨大的影响。该文件的主要贡献在于,为政策制定者和有关公民提供了细致入微的规范GTI的基本选择,并特别考虑了道德公正和公平。随着基于基因的药物的兴起以及减少医疗保健费用的压力不断增加,各国将有更大的动力重新审视其基因检测政策。努力建立GTI监督的组织和政策制定者被认为既公平又有效,需要了解本文讨论的道德观点。

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