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Facebook: a new tool for collecting health data?

机译：Facebook：收集健康数据的新工具？

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This study investigates the use of social networks as a scientific tool for gathering medical data from young subjects while promoting healthier habits. Our first hypothesis is that social networks can facilitate epidemiological studies, reducing time and cost. The second question is whether social networks can enable the collection of data from young and healthy subjects who are otherwise beyond the reach of conventional social health polls. A Facebook application was created to collect data concerning adherence to the Mediterranean diet, considering the significant risk of cardiovascular and neurological degenerative diseases in subjects with poor adherence to a healthy diet. More than 1400 users were recruited in a short time without any promotional action. Collected data indicate that adherence to the Mediterranean diet is in general greater in older users vs young (p < 0.01) and Italian vs Other Countries (mainly participants from the US) (p < 0.03), while no statistical differences were found concerning gender. Results show that the proposed approach offers advantages in terms of reduced cost, faster data gathering and processing, and improved efficiency compared to a form-based epidemiology campaign. However, the initial network may influence the sample constitution in age and geographical location, especially if the spread does not become viral and autonomous. Based on the case study, we provide designers of Facebook apps with some simple guideline suggestions aimed at maximizing the heterogeneity of the sample, in order to collect significant data. The proposed scenario, suitable for collecting health data, can easily be extended to other fields.
机译：这项研究调查了社交网络作为一种科学工具的用途，该工具可以从年轻受试者中收集医疗数据，同时促进更健康的习惯。我们的第一个假设是，社交网络可以促进流行病学研究，从而减少时间和成本。第二个问题是，社交网络是否可以从年轻而健康的受试者那里收集数据，而这些数据是常规社会健康调查所无法企及的。考虑到在不遵守健康饮食的受试者中心血管和神经退行性疾病的重大风险，创建了一个Facebook应用程序来收集有关遵守地中海饮食的数据。在短时间内招募了1400多名用户，而没有采取任何促销措施。收集的数据表明，年龄较大的使用者与年轻人（p <0.01）以及意大利人与其他国家（主要是来自美国的参与者）（p <0.03）相比，使用地中海饮食的人群通常更大，而未发现性别差异。结果表明，与基于表格的流行病学运动相比，该方法在降低成本，加快数据收集和处理以及提高效率方面具有优势。但是，初始网络可能会影响年龄和地理位置的样本构成，尤其是在传播没有变得病毒性和自主性的情况下。基于案例研究，我们为Facebook应用程序的设计师提供了一些简单的准则建议，旨在最大程度地提高样本的异构性，从而收集大量数据。适用于收集健康数据的建议方案可以轻松扩展到其他领域。

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