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Why data-sharing policies matter

机译:为什么数据共享政策很重要

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摘要

Data from biomedical research are more broadly available to the research community today than in the past. Technical developments, such as web-based databases, have played a role in this transition, but so has a fundamental shift in the view of who "owns" research data. The model of the investigator owning data has been increasingly replaced by one in which society owns data. Scientific and cultural forces have converged in the past decade to foster this new model. Numerous examples of broad data sharing, ranging from the Human Genome Project, to the Framingham Heart Study, to the myriad genome-wide association studies deposited in the dbGaP database of the National Institutes of Health (NIH), offer compelling testimony to how broad access accelerates and empowers scientific investigation to benefit society.
机译:来自生物医学研究的数据如今比过去更广泛地提供给研究界。技术开发(例如基于Web的数据库)在此过渡过程中发挥了作用,但对于谁“拥有”研究数据的看法也发生了根本性的转变。拥有数据的调查者模型已越来越多地被社会拥有数据的模型所取代。在过去的十年中,科学和文化力量齐心协力,以培育这种新模式。从人类基因组计划到弗雷明汉心脏研究,再到美国国立卫生研究院(NIH)dbGaP数据库中存储的无数个全基因组关联研究,广泛的数据共享的无数示例为广泛的访问提供了令人信服的证据。加快并授权科学研究以造福社会。

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