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A symptom-based approach to palliative care in cystic fibrosis

机译：基于症状的囊性纤维化姑息治疗方法

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摘要

Cystic fibrosis (CF) has been transformed in the twentieth century from a fatal disease of infants to a chronic, life-limiting illness of children, adolescents, and adults. The increase in life expectancy has been accompanied by an increase in both chronic and acute physical and psychological symptoms. Careful attention to symptom assessment and treatment should now be a routine aspect of care for children and adults with CF. Although life expectancy has increased dramatically, children and adults with CF will still die before their unaffected peers, and careful attention to issues in end-of-life care is still a part of CF care, with the often complicating factor of lung transplantation as a relatively recent arrival. This review will focus on a symptom-based approach to CF care for children and adults throughout the lifespan.
机译：囊性纤维化（CF）在20世纪已经从婴儿的致命疾病转变为儿童，青少年和成人的慢性，致命性疾病。预期寿命的增加伴随着慢性和急性身体和心理症状的增加。现在，认真注意症状评估和治疗应成为CF儿童和成人的日常护理。尽管预期寿命已显着增加，但患有CF的儿童和成人仍会在未受影响的同龄人之前死亡，并且对临终关怀问题的认真关注仍然是CF护理的一部分，而肺移植常常使肺移植成为一个复杂因素。相对较新的到来。这篇综述将重点关注基于症状的儿童和成人在整个生命周期中的CF护理方法。

著录项

  • 来源
    《Progress in Palliative Care》 |2011年第5期|p.230-234|共5页
  • 作者

    Robinson Walter M;

  • 作者单位

    Division of Pediatric Allergy, Immunology, and Pulmonary Medicine, Vanderbilt Children's Hospital, Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN, USA;

  • 收录信息 美国《科学引文索引》(SCI);美国《工程索引》(EI);美国《生物学医学文摘》(MEDLINE);
  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类
  • 关键词

    End-of-life care; Cystic fibrosis; Palliative care;

    机译：临终护理;囊性纤维化;姑息治疗;

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