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首页> 外文期刊>Science, Technology and Human Values >An 'Ethical Moment' in Data Sharing
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An 'Ethical Moment' in Data Sharing

机译：数据共享中的“道德时刻”

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摘要

This study draws on interviews with forty-nine members of a biomedical research community in the UK that is involved in negotiating data sharing and access. During an interview, an interviewee used the words "ethical moment" to describe a confrontation between collaborators in relation to data sharing. In this article, I use this as a lens for thinking about relations between "the conceptual and the empirical" in a way that allows both analyst and actor to challenge the status quo and consider other ethical possibilities. Drawing on actor network theory (ANT), I approach "the empirical" using the concepts of controversy and ontological uncertainty as methodological tools to tackle the problem of ethics. I suggest that these concepts also provide a bridge for understanding the ontological structure of the virtual and the actual, as described in Deleuze's Difference and Repetition. While other science and technology studies scholars have sought to draw on Deleuze, this article addresses the integration of ethics and empirical research. It arises as a critical reaction to existing treatments of this problem as found in empirical ethics, especially in the sociology of bioethics, and indirectly in ANT texts.
机译：这项研究基于对英国一个生物医学研究社区的49名成员的采访，该成员参与了数据共享和访问的谈判。在采访中，受访者使用“道德时刻”一词来描述协作者之间在数据共享方面的对抗。在本文中，我将其用作思考“概念和实证”之间关系的一种方式，使分析人员和参与者都可以挑战现状并考虑其他道德可能性。借鉴演员网络理论（ANT），我使用争议和本体论不确定性的概念作为解决道德问题的方法论工具来探讨“经验主义”。我建议这些概念也为理解虚拟和实际的本体结构提供了桥梁，如Deleuze的“差异与重复”中所述。尽管其他科学技术研究学者试图借鉴德勒兹（Deleuze），但本文还是探讨了伦理学与实证研究的结合。它是对经验伦理学，特别是在生物伦理学社会学中以及间接在ANT文本中发现的对该问题的现有处理的批判性反应。

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