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Advocacy of women family caregivers: response to nonsupportive interactions with professionals.

机译:倡导女性家庭照顾者:对与专业人员的非支持性互动的回应。

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Support from health and social service professionals assists women in caring for a relative with a chronic condition. However, nonsupportive interactions coexist with supportive interactions and might have unanticipated consequences. The purpose of this ethnographic study was to examine advocacy as a proactive response to nonsupportive interactions with professionals among women family caregivers in four caregiving situations. Data generation included in-depth interviews with 34 women. Interviews were tape-recorded, transcribed verbatim, and analyzed using thematic and constant comparative analysis techniques. As a consequence of nonsupportive interactions women experienced negative feelings, a lack of trust, powerlessness, and challenges in their caregiving situations that were catalysts for advocacy involving assertively taking charge in a relationship with a health professional. As advocates women employed strategies of monitoring their relative's condition, educating themselves or others, negotiating or fighting for resources, or campaigning for change. There were stress and fatigue involved in becoming an advocate, but the women also described the experience as one of personal growth. This research provided insight into the role of nonsupportive interactions with professionals as a catalyst for the development of individual-level advocacy initiatives.
机译:卫生和社会服务专业人员的支持可帮助妇女照料患有慢性病的亲戚。但是,非支持性交互作用与支持性交互作用并存,并且可能产生意想不到的后果。这项人种学研究的目的是考察倡导作为对四种照顾情况下女性家庭照顾者与专业人员之间非支持性互动的积极反应。数据生成包括对34名妇女的深入访谈。采访记录,录音逐字记录,并使用专题和持续的比较分析技术进行分析。由于缺乏支持性的互动,妇女在照料情况下会产生消极的感觉,缺乏信任,无能为力和挑战,这是进行倡导工作的催化剂,这些主张包括与卫生专业人员断断续续地负责。作为倡导者,妇女采取了以下策略:监视其亲属的状况,对其自身或他人进行教育,就资源进行谈判或争取或争取改变。成为倡导者时会承受压力和疲劳,但是女性也将这种经历描述为个人成长的一种。这项研究提供了对与专业人员的非支持性交互作用的洞察力,这些交互作用是促进个人级别的倡导计划发展的催化剂。

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