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Resolving to go forward: The experience of Latino/Hispanic family caregivers

机译：决心前进：拉丁裔/西班牙裔家庭照顾者的经验

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摘要

Little is known about the experiences and needs of family caregivers of Latino/Hispanic individuals with spinal cord injury (SCI) during the early years of recovery. The purpose of this grounded theory study was to describe the experiences and identify the informational, decisional, interpersonal, and resource support needs of family caregivers of newly injured Latino/Hispanic individuals with SCI during the first 2 years after undergoing rehabilitation. "Resolving to go forward" was the core category that emerged from two simultaneous processes of "learning to care for" and "getting through" during the initial years as the primary informal caregiver. Most caregivers felt alone and abandoned after the injured person returned home, and experienced barriers to services and resources primarily because of language issues and economic status. We recommend that researchers develop and evaluate culturally appropriate, informal caregiving models to improve outcomes for both Latino individuals with SCI and their family caregivers.
机译：在恢复的最初几年中，对于脊髓损伤的拉丁裔/西班牙裔个体的家庭护理人员的经历和需求了解甚少。这项扎根的理论研究的目的是描述在康复后的头两年内，新受伤的拉丁裔/西班牙裔SCI患者的家庭护理人员的经历并确定其信息，决策，人际关系和资源支持需求。在最初的几年中，“决心前进”是“学习护理”和“通过”这两个同时过程的核心类别，它们是主要的非正式照料者。受伤者返回家园后，大多数护理人员感到孤独，被抛弃，主要由于语言问题和经济状况，他们在服务和资源方面遇到障碍。我们建议研究人员开发和评估具有文化背景的非正式非正式照护模型，以改善患有SCI的拉丁美洲人及其家庭照护者的预后。

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