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首页> 外文期刊>Qualitative health research >'Talk to me--I'm human': the story of a girl, her personhood, and the failures of health care.
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'Talk to me--I'm human': the story of a girl, her personhood, and the failures of health care.

机译：“和我说话-我是人类”：一个女孩的故事，她的人格和医疗保健的失败。

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摘要

Perspectives on the concept of personhood and its relationship to health care delivery are considered in the context of the life of an adolescent with multiple disabilities. One phenomenological interview lasting 3 hours illuminated life-long experiences of suffering, healing, and the quest to be treated as human, as perceived by a 16-year-old girl disfigured by multiple cancer treatments. Age-appropriate development is the ground of her existence, whereas the quality of relationships with care providers and the extent to which they demonstrate regard for her value as a person are figural. Health care providers have often failed to interact with her in ways supporting dignity and growth, treating her with "care" that is antithetical to the aims of their professions. The case has relevance for health care education and practice, challenging professionals to examine their views on personhood and self-care agency, and the ways in which those views impact the care they provide.
机译：在多残障青少年的生活中考虑了人格概念及其与医疗服务之间的关系。一位持续3小时的现象学访谈阐明了毕生的痛苦，康复和寻求被人类对待的经历，这是由一名16岁女孩因接受多种癌症治疗而被毁容所感知的。适合其年龄的发展是她生存的基础，而与护理提供者的关系质量以及他们在多大程度上证明了对她作为一个人的价值的重视。卫生保健提供者常常无法以支持尊严和成长的方式与她互动，而以与他们职业目标相反的“护理”对待她。该案与保健教育和实践有关，要求专业人士研究他们对人格和自我保健机构的看法，以及这些看法影响他们提供的护理的方式。

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