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Caregiving for advanced chronic illness patients

机译:照顾高级慢性病患者

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The transfer of care from the hospital to home settings has shifted responsibility for the day-to-day care of the long-term, medically complex patient to the family. While family members have always provided care to seriously ill relatives, the care that is expected of family members in today's health care environment is vastly more complex than it was just 10 years ago. The chronic illness trajectory denotes the fluctuating, variable course of illness phases over time as well as the actions taken by various participants to shape or control that course. The course of the patient's illness-the illness trajectory-shapes the caregiver's experience, Three different trajectories of advanced, eventually fatal, chronic illness represent differing patient and family caregiver needs: (1) the long stable period followed by a rather abrupt, defined terminal phase and exemplified by cancer; (2) a trajectory marked by a long course of decline with periodic crises alternating with periods of stability, and with a sudden death, exemplified by congestive heart failure and chronic obstructive pulmonary disease; and (3) a long, slow decline with steadily progressive disability before dying of complications of old age, stroke, or dementia. Patients and families want good pain and symptom management for their loved one; accurate, timely, and adequate information (communication); emotional support from and accessibility to providers; and continuity care across settings. The health care system could be doing more to support family caregivers.
机译:从医院到家庭的护理转移已经将负责长期医疗复杂患者的日常护理责任转移到了家庭。尽管家庭成员一直向重病的亲戚提供医疗服务,但是在当今的医疗保健环境中,对家庭成员的预期医疗服务比十年前复杂得多。慢性疾病轨迹表示疾病阶段随时间变化的可变过程,以及各种参与者为塑造或控制该过程所采取的行动。病人的病程-疾病的轨迹-决定了护理者的经历阶段,以癌症为例; (2)以长期下降为特征的轨迹,周期性危机与稳定时期交替出现,并突然死亡,例如充血性心力衰竭和慢性阻塞性肺疾病; (3)在衰老,中风或痴呆的并发症死亡之前,缓慢而缓慢地下降,并逐渐发展为残疾。患者和家人希望为其所爱的人提供良好的疼痛和症状治疗;准确,及时和适当的信息(沟通);提供者的情感支持和可及性;跨设置的连续性护理。卫生保健系统可能会做更多的工作来支持家庭看护人。

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