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首页> 外文期刊>The American journal of hospice and palliative care >The needs of children with life-limiting conditions: a healthcare-provider-based model.
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The needs of children with life-limiting conditions: a healthcare-provider-based model.

机译：有生命限制条件的儿童的需求：基于医疗保健提供者的模型。

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摘要

Pediatric hospice and palliative care has progressed in recent years with the development of new programs and models of care. Missing from the empirical literature, however is a model of the needs of children. The purpose of the present study was to develop an empirically based conceptual model of the needs of children with life-limiting conditions. Recognizing the value of both qualitative and quantitative data, concept mapping methodology was selected as an effective way to obtain data that reflected both the "big picture" and subtleties of pediatric end-of-life needs. The seven-cluster concept map appeared best in terms of both interpretability and parsimony. This model includes the following clusters of needs: 1) pain, 2) decision making, 3) medical system access and quality, 4) dignity and respect, 5) family-oriented care, 6) spirituality, and 7) psychosocial issues. We believe that the development of a comprehensive model of the needs of such children is a step toward concrete, measurable, and effective support for children and their families.
机译：近年来，随着新的护理计划和模式的发展，儿科临终关怀和姑息治疗取得了进步。然而，从经验文献中缺少的是儿童需求的模型。本研究的目的是为有生命限制条件的儿童的需求建立基于经验的概念模型。认识到定性和定量数据的价值，因此选择了概念图方法作为一种有效的方法，以获取既反映“总体情况”又反映小儿报废需求的数据。就解释性和简约性而言，七类概念图显得最好。该模型包括以下几类需求：1）痛苦，2）决策，3）医疗系统的使用和质量，4）尊严和尊重，5）面向家庭的护理，6）灵性和7）社会心理问题。我们认为，建立这种儿童需求的全面模型是迈向向儿童及其家庭提供具体，可衡量和有效支持的一步。

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