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首页> 外文期刊>The International journal of social psychiatry >Burden of informal care giving to patients with psychoses: A descriptive and methodological study
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Burden of informal care giving to patients with psychoses: A descriptive and methodological study

机译：给予精神病患者的非正式护理负担：描述性和方法论研究

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Background: There is a lack of studies of the size of burden associated with informal care giving in psychosis. Aims: To evaluate the objective and subjective burden of informal care giving to patients with psychoses, and to compare a diary and recall method for assessments of objective burden. Method: Patients and their informal caregivers were recruited from nine Swedish psychiatric outpatient centres. Subjective burden was assessed at inclusion using the CarerQoL and COPE index scales. The objective burden (time and money spent) was assessed by the caregivers daily using diaries over four weeks and by recall at the end of weeks 1 and 2. Results: One-hundred and seven patients (53% females; mean age 43 ± 11) and 118 informal caregivers (67%; 58 ± 15 years) were recruited. Informal caregivers spent 22.5 hours/week and about 14% of their gross income on care-related activities. The time spent was underestimated by two to 20 hours when assessed by recall than by daily diary records. The most prominent aspects of the subjective burden were mental problems. Conclusion: Despite a substantial amount of time and money spent on care giving, the informal caregivers perceived the mental aspects of burden as the most troublesome. The informal caregiver burden is considerable and should be taken into account when evaluating effects of health care provided to patients with psychoses.
机译：背景：缺乏对与精神病患者非正式护理相关的负担规模的研究。目的：评估给予精神病患者的非正式护理的客观和主观负担，并比较日记和回忆方法来评估客观负担。方法：从瑞典的9个精神科门诊中心招募患者及其非正式护理人员。使用CarerQoL和COPE指数量表评估纳入时的主观负担。护理人员每天在四周内使用日记评估客观负担（花费的时间和金钱），并在第1和2周结束时进行回忆。结果：一百零七名患者（53％为女性;平均年龄43±11） ）和118名非正式护理员（67％; 58±15岁）被招募。非正式护理人员每周花费22.5小时，约占其总收入的14％用于与护理有关的活动。通过召回评估比通过每日日记记录评估花费的时间低估了2到20个小时。主观负担最突出的方面是精神问题。结论：尽管在护理上花费了大量时间和金钱，但非正式的护理人员却认为负担的精神方面是最麻烦的。非正式照料者的负担相当大，在评估向精神病患者提供的医疗保健效果时应予以考虑。

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