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首页> 外文期刊>The journal of sexual medicine >Sexual and reproductive health knowledge in cystic fibrosis female patients and their parents.
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Sexual and reproductive health knowledge in cystic fibrosis female patients and their parents.

机译：囊性纤维化女性患者及其父母的性健康和生殖健康知识。

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INTRODUCTION: The changing outcomes for young cystic fibrosis (CF) patients means that reproductive health issues have become an integral part of CF management. AIM: The aim of this study was to investigate the knowledge and experiences of reproductive and sexual health issues in women with CF and to investigate the knowledge and reproductive health attitudes of their parents. MAIN OUTCOME MEASURES: Assessment of reproductive and sexual health knowledge in female CF patients and their parents. METHODS: A questionnaire study directed to 120 Polish women with CF aged 16 years and older and their parents. RESULTS: Sixty-four patients and their parents responded to the questionnaire. Sixty-eight percent of the patients started sexual intercourse at a mean age of 19.2 years. Eighty-four percent of all sexually active women reported that they did not use any form of contraception. Only 32.8% of women understood the problems connected with their own and male fertility in CF. Popular scientific publications and other CF patients were identified as the most important source of information. Only 23% of parents understood the problems connected with female fertility in CF; 44% of parents thought that man with CF had normal fertility. Seventy-five percent of the women and 40% of the parents felt that sexual health discussions should begin between age 12 and 14 years with a CF doctor and the mother. CONCLUSIONS: Our study showed that significant knowledge gaps exist regarding fertility issues in both CF patients and CF parents. Women with CF have some general knowledge about sexual issues but insufficient knowledge to have a safe sexual life. The results helped us to develop the educational program for CF patients.
机译：简介：年轻的囊性纤维化（CF）患者的结局不断变化，意味着生殖健康问题已成为CF治疗不可或缺的一部分。目的：本研究的目的是调查患有CF的女性的生殖和性健康问题的知识和经验，并调查其父母的知识和生殖健康态度。主要观察指标：评估女性CF患者及其父母的生殖和性健康知识。方法：一项针对120名波兰妇女（年龄在16岁以上）及其父母的问卷调查研究。结果：64例患者及其父母对问卷进行了回答。 68％的患者开始性交，平均年龄为19.2岁。在所有从事性活动的女性中，有84％的女性表示没有使用任何形式的避孕措施。只有32.8％的女性了解CF自身和男性生育相关的问题。流行的科学出版物和其他CF患者被确定为最重要的信息来源。只有23％的父母了解与CF的女性生育率相关的问题; 44％的父母认为CF男性的生育力正常。 75％的妇女和40％的父母认为，性健康讨论应在CF医生和母亲的12至14岁之间开始。结论：我们的研究表明，CF患者和CF父母在生育问题上存在明显的知识鸿沟。患有CF的女性对性问题有一些一般的了解，但是对安全性生活的了解不足。结果帮助我们制定了针对CF患者的教育计划。

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