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A guide of the questionnaires used in the measurement of health-related quality of life in head and neck oncology.

机译：用于测量头颈肿瘤健康相关生活质量的问卷的指南。

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摘要

AIMS AND BACKGROUND: There is a plethora of instruments which measure health-related quality of life (HRQOL), although only a fraction of these have been used in surgical studies and palliative care. Clinicians involved in the management of head and neck pathology face the difficult task of selecting the instrument most suited to the aspect of the patients' perspective that they want to measure. The aim of this article is to guide head and neck trainees in deciding on the use of the appropriate instrument for evaluation of the patient's perspective. METHODS AND STUDY DESIGN: The two authors independently searched and scrutinized the literature. The ISI search engine with cross-reference using PubMed and Ovid was searched with the terms "quality of life", "questionnaire" and specific specialty terms. Studies written in the English language were selected and the abstracts searched for evidence of patient self-completed questionnaires and HRQOL outcome. RESULTS: There are five broad category headings intowhich quality of life studies in head and neck oncology can be divided. These include: patient performance questionnaires, generic quality of life questionnaires, generic cancer questionnaires, head and neck cancer questionnaires, and head and neck functional questionnaires. CONCLUSIONS: Patient perspective can be assessed using a number of instruments, including open interview, semi-structured interview, and the simple questionnaire. The choice of instrument depends somewhat on personal preference, the outcomes being measured, and available resources.
机译：目的和背景：尽管有一部分仪器用于外科研究和姑息治疗，但仍有许多仪器可以测量与健康相关的生活质量（HRQOL）。参与头颈部病理学治疗的临床医生面临着一项艰巨的任务，即选择最适合他们要测量的患者视角的仪器。本文的目的是指导头部和颈部受训人员决定使用适当的仪器来评估患者的视野。方法和研究设计：两位作者对文献进行了独立搜索和审查。使用PubMed和Ovid进行交叉引用的ISI搜索引擎搜索了“生活质量”，“问卷”和特定专业术语。选择以英语编写的研究，并从摘要中寻找患者自我完成的问卷和HRQOL结果的证据。结果：头颈肿瘤的生活质量研究可分为五个大类。其中包括：患者表现调查表，一般生活质量调查表，一般癌症调查表，头颈癌调查表以及头颈功能调查表。结论：可以使用许多工具评估患者的观点，包括公开访谈，半结构化访谈和简单问卷。工具的选择在某种程度上取决于个人喜好，所衡量的结果和可用资源。

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