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首页> 外文期刊>Health expectations: an international journal of public participation in health care and health policy >Information and decision support needs of parents considering amniocentesis: interviews with pregnant women and health professionals.
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Information and decision support needs of parents considering amniocentesis: interviews with pregnant women and health professionals.

机译：考虑羊膜穿刺术的父母的信息和决策支持需求：与孕妇和卫生专业人员的访谈。

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OBJECTIVE: Our aim was to clarify and categorize information and decision support needs of pregnant women deciding about amniocentesis. BACKGROUND: Prenatal screening for Down's syndrome (implemented in routine practice) generates a quantifiable risk of chromosome abnormality. To increase certainty, chromosomal material needs to be obtained through amniocentesis or other diagnostic test. Amniocentesis carries risks of pregnancy loss. METHODS: Semi-structured interviews were conducted with health professionals and pregnant women who had considered amniocentesis. The data were qualitatively analysed using a two-step thematic content analysis. RESULTS: A sample of 17 health professionals and 17 pregnant women were interviewed. Professionals demonstrated little consensus regarding the miscarriage rate, the potential consequences of amniocentesis testing and the uncertainty associated with the tests. Furthermore, methods employed to communicate risks varied between professionals. Pregnant women reported heightened stress and anxiety. Twelve out of 17 women described the decision as complex and difficult to make while five participants were satisfied with the information and support provided. Women would have liked more information about the risks involved, the results, the consequences of an amniocentesis and associated emotional difficulties. Women highlighted the need for personalized information, presented in multiple ways, while remaining simple and unbiased. CONCLUSIONS: There is variation in the provision of information related to amniocentesis testing. The majority of pregnant women reported difficulties making a decision and identified dimensions of information and decision support where improvements were needed.
机译：目的：我们的目的是明确和分类决定羊膜穿刺术的孕妇的信息和决策支持需求。背景：唐氏综合症的产前筛查（在常规实践中实施）会产生可量化的染色体异常风险。为了增加确定性，需要通过羊膜穿刺术或其他诊断测试获得染色体材料。羊膜穿刺术有流产的风险。方法：对卫生专业人员和考虑羊膜穿刺术的孕妇进行半结构式访谈。使用两步主题内容分析对数据进行定性分析。结果：采访了17名卫生专业人员和17名孕妇的样本。专业人士对流产率，羊膜穿刺术测试的潜在后果以及与测试相关的不确定性几乎没有共识。此外，专业人员之间交流风险的方法也有所不同。孕妇报告说压力和焦虑加剧。在17名妇女中，有12名将这项决定描述为复杂且难以做出，而五名参与者对所提供的信息和支持感到满意。妇女希望获得有关所涉及的风险，结果，羊膜穿刺术的后果以及相关的情绪障碍的更多信息。妇女强调需要个性化信息，以多种方式呈现，同时保持简单和公正。结论：与羊膜穿刺术测试有关的信息提供存在差异。大多数孕妇报告难以做出决定，并确定了需要改进的信息和决定支持的范围。

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