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Patients' uses of information as researchable domains of social practice

机译：患者使用信息作为社会实践的可研究领域

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In this article we argue that research into information for patients has to extend beyond an evaluation of particular information resources to studies of how those resources are engaged with, made sense of and used in practice. We draw on empirical data collected in the course of a study of a patient information resource designed for breast cancer patients in Liverpool and Newcastle in order to demonstrate the limitations of a restricted focus on information resources alone-namely, that it does not take into account the specific ways in which information is incorporated within what patients do as the grounds of 'further inference and action'. Our interest is less in discussing the strengths and weaknesses of this particular resource than in explicating some neglected aspects of the commonplace ways in which patients 'work' with information. We conclude by sketching some broad features of those 'reading' and 'linking' practices, the study of which, we believe, would help us as researchers to explicate the 'problem of information' as it is actually encountered and resolved by patients in realworld settings for their own practical purposes. Taking our lead from ethnomethodological studies and related research in various fields, we argue patients' uses of information are social practices that can and should be treated as researchable phenomena.
机译：在本文中，我们认为，对患者信息的研究必须超越对特定信息资源的评估，而应研究这些资源如何与之互动，理解并在实践中使用。我们利用在为利物浦和纽卡斯尔的乳腺癌患者设计的患者信息资源的研究过程中收集的经验数据，以证明仅关注信息资源的局限性即没有考虑到这一点在患者所做的工作中整合信息的特定方式，以此作为“进一步推论和行动”的依据。我们的兴趣不是在讨论这种特殊资源的优点和缺点，而是在阐明患者“使用”信息的普通方法中一些被忽略的方面。最后，我们概述了“阅读”和“链接”实践的一些广泛特征，我们认为这些研究将有助于我们作为研究人员阐明现实世界中患者实际遇到和解决的“信息问题”根据自己的实际目的进行设置。从人类方法学研究和各个领域的相关研究中得出的结论，我们认为患者对信息的使用是可以并且应该被视为可研究现象的社会实践。

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