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首页> 外文期刊>Journal of advanced nursing >Using Nominal Group Technique to investigate the views of people with intellectual disabilities on end-of-life care provision.
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Using Nominal Group Technique to investigate the views of people with intellectual disabilities on end-of-life care provision.

机译:使用名义团体技术调查智障人士对临终护理的看法。

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AIM: This paper is a report of a study using the Nominal Group Technique as a method to elicit the views of people with intellectual disabilities on sensitive issues, in this example end-of-life care provision. BACKGROUND: Establishing consumer views is essential in providing appropriate end-of-life care, yet people with intellectual disabilities have historically been excluded from giving their opinion and participating in research. METHODS: Nominal Group Technique was used in three groups, with a total of 14 participants who had mild and moderate intellectual disabilities. This technique involves four steps: (1) silent generation of ideas, (2) round robin recording of ideas; (3) clarification of ideas and (4) ranking of ideas (voting). Participants were presented with an image of a terminally ill woman (Veronica), and were asked: 'What do you think people could do to help Veronica?' FINDINGS: Participants generated a mean of nine individual responses. The highest rankings were given to issues around involvement in one's own care, presence of family and friends, offering activities to the ill person, and physical comfort measures. CONCLUSION: People with mild and moderate intellectual disabilities are capable of expressing their views on end-of-life care provision, and should be asked to do so. The Nominal Group Technique presents an effective and acceptable methodology in enabling people with intellectual disabilities to generate their views.
机译:目的:本文是一项研究的报告,该研究使用名义群体技术作为一种方法,以引起智障人士对敏感问题(在本例中为临终护理条款)的看法。背景:建立消费者的观点对于提供适当的临终关怀至关重要,但是从历史上看,智障人士一直被拒绝发表意见并参与研究。方法:名义组技术被分为三组,共有14名轻度和中度智力障碍的参与者。该技术包括四个步骤:(1)静默产生想法;(2)轮流录制想法; (3)阐明想法和(4)想法排名(投票)。向参加者展示了一名身患绝症的妇女(维罗妮卡)的图像,并被问到:“您认为人们可以怎样帮助维罗妮卡?”结果:参与者产生了9个个人回复的平均值。围绕个人护理,家人和朋友的存在,为病者提供的活动以及身体舒适度等问题,得分最高。结论:轻度和中度智障人士有能力表达其对临终护理服务的看法,应要求这样做。名义团体技术提出了一种有效且可接受的方法,以使智障人士能够发表自己的观点。

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