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首页> 外文期刊>Journal of advanced nursing >Diaries as research data in a study on family caregivers of people with Alzheimer's disease: methodological issues.
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Diaries as research data in a study on family caregivers of people with Alzheimer's disease: methodological issues.

机译：在阿尔茨海默氏病患者的家庭护理人员研究中，日记作为研究数据：方法论问题。

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AIM: This paper is a discussion of the use of unstructured diaries and their benefits and limitations as primary research data in a study of family caregivers of people with Alzheimer's disease. BACKGROUND: Caregivers' diaries have rarely been used to study family caregivers' subjective knowledge of life with a family member with Alzheimer's disease. METHOD: Family caregivers wrote unstructured diaries for 2 weeks during the period 2002-2004, starting within 6 months after the diagnosis of Alzheimer's disease in a family member. The family caregivers (n 83) were voluntary participants in an ongoing intervention study (patients n 241 and caregivers n = 241). The diaries were analysed using content analysis. FINDINGS: The diary data were categorized into the following four different types: meagre, reporting, descriptive and reflective. They described the family caregivers' experiential world and the changes taking place in it. Family caregivers found diary-writing a therapeutic and pleasant experience. The use of written diaries involves some limitations concerning high dependency on writers, and data solely in written form. An effort to confirm the quality of data should be made by personal contacts. CONCLUSION: Diaries can be used as a primary method of data collection in nursing research, as they produce subjective knowledge of the experiences, emotions and meanings associated with caregiving. Their use can result in a high level of motivation, and ability to reflect on life promotes successful writing.
机译：目的：本文讨论了非结构化日记的使用及其益处和局限性，作为阿尔茨海默氏病患者家庭照顾者研究中的主要研究数据。背景：照顾者的日记很少用于研究家庭照顾者对患有阿尔茨海默氏病的家庭成员的生活的主观知识。方法：家庭护理人员在2002-2004年期间撰写了2周的非结构化日记，从其家人被诊断出阿尔茨海默氏病后的6个月内开始。家庭照顾者（n = 83）是一项正在进行的干预研究的自愿参与者（患者n 241，照顾者n = 241）。使用内容分析法分析日记。结果：日记数据分为以下四种不同类型：粗俗，报告，描述性和反思性。他们描述了家庭护理人员的体验世界及其发生的变化。家庭护理人员发现写日记可以带来治疗和愉悦的体验。书面日记的使用涉及到一些对作者高度依赖以及仅以书面形式提供数据的限制。应该通过个人联系来确认数据的质量。结论：日记可以作为护理研究中数据收集的主要方法，因为日记可以产生与护理有关的经验，情感和含义的主观知识。他们的使用可以带来很高的动力，对生活进行反思的能力可以促进成功的写作。

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