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首页> 外文期刊>Journal of advanced nursing >Living with chronic obstructive pulmonary disease at the end of life: a phenomenological study.
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Living with chronic obstructive pulmonary disease at the end of life: a phenomenological study.

机译：生命终期患有慢性阻塞性肺疾病：一项现象学研究。

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AIM: This paper is a report of a study to describe the essential structure of the lived experience of living with severe chronic obstructive pulmonary disease (COPD) during the palliative phase of the disease. BACKGROUND: Chronic obstructive pulmonary disease is one of the most common diseases throughout the world. Shortness of breath, fatigue and cough are the most troublesome symptoms, and living with COPD often imposes limitations on daily living. The disease has a great impact on quality of life and affects the extent to which people can be active in daily life. METHODS: We conducted qualitative interviews of eight people with COPD and collected data over a 2-month period in 2003. Our patients were recruited from two pulmonary disease clinics in West Sweden. We used a phenomenological methodology to analyse the interviews. FINDINGS: Daily life for people with COPD is affected in several different ways. The patients described how their physical limitations forced them to refrain from meaningful activities in everyday life and led to social isolation. Everyday emotions vacillated between viewing life as meaningful and meaningless. A sense of involvement and the belief that life was meaningful gave the individual the energy and the desire to continue living and to envision a future. CONCLUSION: Nursing care should include support and facilitation, so that patients can live rather than exist to the end of their lives. It is important to learn from patients and tailor activities to their social, existential and physical priorities, where appropriate family-centred support may be most effective.
机译：目的：本文是一项研究报告，旨在描述在疾病的姑息阶段患有严重慢性阻塞性肺疾病（COPD）的生活经验的基本结构。背景：慢性阻塞性肺疾病是全世界最常见的疾病之一。呼吸急促，乏力和咳嗽是最麻烦的症状，患有COPD的人经常会限制日常生活。该疾病对生活质量有很大影响，并影响人们在日常生活中的活跃程度。方法：2003年，我们对8名COPD患者进行了定性访谈，并在2个月内收集了数据。我们的患者来自西瑞典的两家肺病诊所。我们使用现象学的方法来分析访谈。结果：COPD患者的日常生活受到多种不同方式的影响。患者描述了他们的身体限制如何迫使他们在日常生活中避免有意义的活动并导致社交孤立。在将生活视为有意义和无意义之间，每天的情绪都在动摇。一种参与感和对生活有意义的信念赋予了人们继续生活和展望未来的能量和渴望。结论：护理应包括支持和便利，以使患者能够生存而不是生存。在适当的以家庭为中心的支持可能最有效的情况下，向患者学习并根据他们的社会，生存和身体优先事项进行活动是很重要的。

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