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首页> 外文期刊>Clinical investigation >Lost in translation: will the 'personal' become Impersonal' when conducting research in the age of technology?
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Lost in translation: will the 'personal' become Impersonal' when conducting research in the age of technology?

机译：迷失在翻译中：在技术时代进行研究时，“个人”会变成“非个人”吗？

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As new technology permeates the research process, could the personal touch be lost in translation? When conducting research, its success is dependent upon the relationships established between the investigator, their research team and the study participants. Penckofer, Byrn, Mumby and Ferrans identify factors often associated with successful recruitment and retention of study participants, including advertising through branding, monetary incentives, convenient times and the altruistic nature of individuals. They emphasize, however, that the single most important factor in subject accrual and participation is the relationship (s) the participant establishes with the study personnel during their research experience. Using 'Peplau's Theory of Interpersonal Relations', they address the three phases of the relationship that develop as the study participant engages in the research process. The first phase called the 'orientation phase' occurs when the participant has their first encounter with the study personnel, most often a nurse. It is during this time that the participant is informed about the intent of the study and has a discussion about the risks and benefits (if any) of the study prior to signing the informed-consent document. It is also during this time that trust is established between the participant and the study nurse. The orientation phase occurs most often during a face-to-face experience and, as described by Peplau, it is during this time that "knowing the individual needs of the person, the nurse helps to establish caring interactions that are necessary for the relationship". Trust is essential for the participant to proceed into the 'working phase' of the relationship. This can be the time during which the participant engages in the activity of the study (e.g., the treatment or control) and where he/she "may learn about their current health condition, understand their condition and identify what is required for them to care for themselves". During this phase, it is important that communication continues between the participant and nurse to maintain their relationship. It is possible that as respondent burden increases (frequent data collection points); more contact is needed by the nurse to address participant concerns and/or maintain their engagement in the protocol. These interactions are often face-to-face, but may also be conducted by telephone, particularly for longitudinal studies. It is during this phase that the nurse may be challenged as she experiences conflict in her role as a 'study nurse' rather than as a nurse who is 'providing care'. This conflict may or may not influence the trusting relationship that has been established (e.g., not able to disclose information due to study protocol). However, if the role performed by the nurse is not congruent with the study protocol, it can impact on the integrity of the study itself .
机译：随着新技术渗透到研究过程中，翻译中的个人风格会丢失吗？进行研究时，其成功取决于研究者，他们的研究团队和研究参与者之间建立的关系。 Penckofer，Byrn，Mumby和Ferrans确定了通常与成功招募和留住研究参与者相关的因素，包括通过品牌宣传，金钱激励，便利时间和个人的利他性质进行的广告。但是，他们强调，受试者获得和参与的最重要因素是参与者在研究经验期间与研究人员建立的关系。他们使用“佩普劳的人际关系理论”解决了研究参与者参与研究过程中关系发展的三个阶段。当参与者与研究人员（通常是护士）首次接触时，就会发生第一阶段的“定向阶段”。正是在这段时间里，参与者在签署知情同意文件之前被告知了研究的意图，并讨论了研究的风险和收益（如果有）。也正是在这段时间里，参与者与研究护士之间建立了信任。定向阶段最经常发生在面对面的体验中，正如Peplau所描述的，正是在这段时间中，“了解人的个人需求，护士帮助建立关系所需的关爱互动” 。信任对于参与者进入关系的“工作阶段”至关重要。这可以是参与者从事研究活动（例如治疗或对照）的时间，并且他/她可以“了解他们当前的健康状况，了解他们的状况并确定他们需要护理的时间”为自己”。在此阶段，参与者与护士之间继续进行沟通以保持他们之间的关系非常重要。随着受访者负担的增加（数据收集点频繁）;护士需要更多的接触来解决参与者的担忧和/或保持他们对规程的参与。这些交互作用通常是面对面的，但也可以通过电话进行，特别是对于纵向研究。在此阶段，护士可能会受到挑战，因为她在“学习护士”而不是“提供护理”的护士中遇到冲突。此冲突可能会或可能不会影响已建立的信任关系（例如，由于研究方案而无法披露信息）。但是，如果护士所扮演的角色与研究方案不一致，则可能会影响研究本身的完整性。

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