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首页> 外文期刊>Clinical journal of the American Society of Nephrology: CJASN >Attitudes to sharing personal health information in living kidney donation
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Attitudes to sharing personal health information in living kidney donation

机译：在活体肾脏捐赠中分享个人健康信息的态度

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Background and objectives: In living kidney donation, transplant professionals consider the rights of a living kidney donor and recipient to keep their personal health information confidential and the need to disclose this information to the other for informed consent. In incompatible kidney exchange, personal health information from multiple living donors and recipients may affect decision making and outcomes. Design, setting, participants, & measurements: We conducted a survey to understand and compare the preferences of potential donors (n = 43), potential recipients (n = 73), and health professionals (n = 41) toward sharing personal health information (in total 157 individuals). Results: When considering traditional live-donor transplantation, donors and recipients generally agreed that a recipient's health information should be shared with the donor (86 and 80%, respectively) and that a donor's information should be shared with the recipient (97 and 89%, respectively). When considering incompatible kidney exchange, donors and recipients generally agreed that a recipient's information should be shared with all donors and recipients involved in the transplant (85 and 85%, respectively) and that a donor's information should also be shared with all involved (95 and 90%, respectively). These results were contrary to attitudes expressed by transplant professionals, who frequently disagreed about whether such information should be shared. Conclusions: Future policies and practice could facilitate greater sharing of personal health information in living kidney donation. This requires a consideration of which information is relevant, how to put it in context, and a plan to obtain consent from all concerned.
机译：背景和目标：在活体肾脏捐献中，移植专业人士考虑到活体肾脏供体和接受者对自己的个人健康信息保密的权利，以及需要在知情同意下向另一方披露此信息的权利。在不兼容的肾脏交换中，来自多个活体供体和接受者的个人健康信息可能会影响决策和结果。设计，设置，参与者和度量：我们进行了一项调查，以了解和比较潜在捐赠者（n = 43），潜在接收者（n = 73）和卫生专业人员（n = 41）在共享个人健康信息时的偏好（共有157个人）。结果：在考虑传统的活体供体移植时，供体和接受者普遍同意应与供者共享接受者的健康信息（分别为86％和80％），并且应与接受者共享供者的信息（97％和89％ ， 分别）。在考虑不兼容的肾脏交换时，供体和接受者通常同意应与参与移植的所有供体和接受者共享接受者的信息（分别为85％和85％），并且还应与所有参与的患者共享供体信息。 90％）。这些结果与移植专业人员表达的态度背道而驰，他们经常不同意是否应共享此类信息。结论：未来的政策和实践可以促进活体肾脏捐赠中更多的个人健康信息共享。这就需要考虑哪些信息是相关的，如何将其放在上下文中，以及一个计划以获得所有有关方面的同意。

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