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首页> 外文期刊>Journal of cystic fibrosis: official journal of the European Cystic Fibrosis Society >Gender differences in treatment adherence among youth with cystic fibrosis: Development of a new questionnaire.
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Gender differences in treatment adherence among youth with cystic fibrosis: Development of a new questionnaire.

机译：患有囊性纤维化的年轻人在治疗依从性方面的性别差异：开发新问卷。

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BACKGROUND: Some prior studies have reported that girls with cystic fibrosis (CF) experience higher morbidity and mortality compared to boys. In this study, the authors compared boys' and girls' perceptions of disease-related strains and resources associated with living with CF, and the relationship of these factors to CF treatment feelings and behaviors. METHODS: All 10-21 year olds with CF at the Minnesota Cystic Fibrosis Center were invited by mail to complete a new self-report survey (Living with CF Questionnaire - LCFQ). Of these 177 youth, 58% (49 boys and 54 girls) returned surveys. RESULTS: Exploratory and confirmatory factor analyses revealed nine factors in the LCFQ. Partial support was found for hypothesized gender differences in these factors. Compared to boys, girls reported significantly more illness-related strains and worries, including emotional strains, greater treatment discouragement, lower self-esteem, and lower adherence to some aspects of the CF treatment regimen (coughing, eating high-fat foods, taking meds/pills). CONCLUSIONS: Living with CF appears to have a greater emotional impact on adolescent girls compared to boys. These gender differences may contribute to the poorer pulmonary function observed among girls with cystic fibrosis during the adolescent years.
机译：背景：一些先前的研究报道，与男孩相比，患有囊性纤维化（CF）的女孩的发病率和死亡率更高。在这项研究中，作者比较了男孩和女孩对与CF一起生活的疾病相关菌株和资源的看法，以及这些因素与CF治疗的感觉和行为之间的关系。方法：通过邮件邀请明尼苏达州囊性纤维化中心所有10-21岁的CF患者完成一项新的自我报告调查（与CF问卷一起生活-LCFQ）。在这177名青年中，有58％（49名男孩和54名女孩）返回了调查。结果：探索性和确认性因素分析显示LCFQ中的九个因素。对于这些因素中假设的性别差异，发现了部分支持。与男孩相比，女孩报告的与疾病相关的压力和忧虑明显更多，包括情绪紧张，沮丧的治疗，自尊心降低以及对CF治疗方案某些方面的依从性降低（咳嗽，进食高脂食物，服用药物） /丸）。结论：与男孩相比，与CF一起生活对青少年女孩的情感影响似乎更大。这些性别差异可能会导致在青春期患有囊性纤维化的女孩中观察到较差的肺功能。

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