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Using Cognitive Testing to Develop Items for Surveying Asian American Cancer Patients and Their Caregivers as a Pathway to Culturally Competent Care

机译:使用认知测试来开发调查亚裔美国人癌症患者及其护理人员的项目,以作为具有文化能力的护理的途径

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We report the results from cognitive interviews with Asian American patients and their caregivers. We interviewed seven caregivers and six patients who were all bilingual Asian Americans. The main goal of the cognitive interviews was to test a survey instrument developed for a study about perspectives of Asian American patients with advanced cancer who are facing decisions around end-of-life care. We were particularly interested to see whether items commonly used in White and Black populations are culturally meaningful and equivalent in Asian populations, primarily those of Chinese and Vietnamese ethnicity. Our exploration shows that understanding respondents' language proficiency, degree of acculturation, and cultural context of receiving, processing, and communicating information about medical care can help design questions that are appropriate for Asian American patients and caregivers, and therefore can help researchers obtain quality data about the care Asian American cancer patients receive.
机译:我们报告了对亚裔美国人及其护理人员进行认知访谈的结果。我们采访了七名都是双语亚裔美国人的看护者和六名患者。认知访谈的主要目的是测试一种调查工具,该工具是为研究亚裔美国晚期癌症患者面临临终护理决策的观点而开发的。我们特别感兴趣的是,看看白人和黑人人口中常用的物品在文化上是否有意义,并且在亚洲人群(主要是中国和越南族裔)中是否等效。我们的探索表明,了解受访者的语言水平,适应程度以及接收,处理和交流有关医疗保健信息的文化背景可以帮助设计适合亚裔患者和护理人员的问题,从而可以帮助研究人员获得高质量的数据关于亚裔美国癌症患者接受的护理。

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