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Transition Needs of Parents of Adolescents and Emerging Adults With Special Health Care Needs and Disabilities

机译:青少年父母和具有特殊医疗保健需求和残疾的新兴成年人的过渡需求

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The period of health care transition (HCT) for adolescents and emerging adults with special health care needs and disabilities involves a complex realignment of the parent-child relationship, including alterations in role responsibilities and decision making. The purpose of this systematic review was to analyze the research designs, methodology, and findings reported in studies of parents during this transition period to provide new insights for research and clinical practice. Results showed that parents were unable to clearly envision what the future held for their children and were not well prepared by the service system to anticipate future prospects. These parents have a myriad of needs that are not yet fully understood, as HCT research is in the early stages of development.
机译:具有特殊医疗保健需求和残疾的青少年和新兴成年人的医疗保健过渡期涉及母子关系的复杂调整,包括角色职责和决策的改变。该系统评价的目的是分析在此过渡时期父母的研究中报告的研究设计,方法和发现,以为研究和临床实践提供新的见解。结果表明,父母无法清楚地预见孩子的未来,服务系统也没有为未来的前景做好充分的准备。由于HCT研究尚处于发展的早期阶段,因此这些父母有各种各样的需求尚未得到充分理解。

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