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首页> 外文期刊>Journal of geriatric oncology >Effective communication of study results to older participants with prostate cancer: Results of a survey
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Effective communication of study results to older participants with prostate cancer: Results of a survey

机译：研究结果与老年前列腺癌参与者的有效沟通：一项调查结果

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Objectives: We examined attitudes towards, satisfaction with, and costs associated with providing end of study feedback in a group presentation format to older men participating in an observational prostate cancer study. We also aimed to capture the resources required for such a presentation. Methods: We invited all 186 participants of a longitudinal matched cohort study examining health effects of androgen deprivation therapy in men with prostate cancer who were attending an end-of-study presentation to complete a survey exploring attitudes towards and prior experience with end-of-study results. We also explored the burden communicating end-of-study results might place on study investigators and clinicians. Results: Usable surveys were returned by 59 of 70 presentation attendees (84%). Thirty-nine of 59 respondents were study participants while the rest were spouses or guests. Eighty-five percent of respondents agreed/strongly agreed that they had a right to know end-of-study results. Forty-six percent wanted to receive results via email while 45% wanted a group presentation. One-third of respondents had participated in clinical research before; of these, 84% never received study results. Ninety percent of respondents indicated that they were more likely to participate in a study if they knew results would be provided to them. Total resources were under 40. hours and $670 CAD. Conclusions: End-of-study results are expected by most study participants. Presentation of aggregate results in a group format may be an effective and efficient way to communicate study results. Including a commitment to an end-of-study presentation may enhance recruitment. Attitudes of non-attendees should be examined in future research.
机译：目的：我们研究了对参加观察性前列腺癌研究的老年男性以小组介绍的形式提供研究结束反馈的态度，满意度和相关费用。我们还旨在获取此类演示文稿所需的资源。方法：我们邀请了186名纵向配对研究的所有参与者，研究了雄激素剥夺疗法对参加研究结局的前列腺癌男性的健康影响，完成了一项调查，探讨了对治疗终点的态度和以往的经验。研究结果。我们还探讨了传达研究结局结果可能给研究调查人员和临床医生带来的负担。结果：70位演讲嘉宾中的59位（84％）返回了可用的调查。 59名受访者中有39名是研究参与者，其余为配偶或客人。百分之八十五的受访者同意/强烈同意他们有权知道研究结局的结果。 46％的人希望通过电子邮件接收结果，而45％的人希望进行小组演示。三分之一的受访者之前曾参加过临床研究;其中84％的人从未收到研究结果。 90％的受访者表示，如果他们知道会向他们提供结果，他们更有可能参加研究。总资源少于40小时，费用为670加元。结论：大多数研究参与者都希望获得最终的研究结果。以组格式显示汇总结果可能是交流研究结果的有效方式。包括对研究结束演讲的承诺可能会增加招聘。未参加会议者的态度应在以后的研究中进行检查。

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