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Cancer patient and survivor research from the cancer information service research consortium: A preview of three large randomized trials and initial lessons learned

机译:癌症信息服务研究财团的癌症患者和幸存者研究:三个大型随机试验和初步经验教训的预览

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摘要

The authors describe 3 large randomized trials from the Cancer Information Service Research Consortium. Three web-based multimedia programs are being tested to help newly diagnosed prostate (Project 1) and breast cancer patients (Project 2) make informed treatment decisions and breast cancer patients prepare for life after treatment (Project 3). Project 3 also tests a telephone callback intervention delivered by a cancer information specialist. All participants receive standard print material specific to each project. Preliminary results from the 2-month follow-up interviews are reported for the initial wave of enrolled participants, most of whom were recruited from the Cancer Information Service (1-800-4-CANCER) telephone information program (Project 1: n =208; Project 2: n =340; Project 3: n =792). Self-reported use of the multimedia program was 51%, 52%, and 67% for Projects 1, 2, and 3, respectively. Self-reported use of the print materials (read all, most, or some) was 90%, 85%, and 83% for Projects 1, 2, and 3, respectively. The callback intervention was completed by 92% of Project 3 participants. Among those using the Cancer Information Service Research Consortium interventions, perceived usefulness and benefit was high, and more than 90% reported that they would recommend them to other cancer patients. The authors present 5 initial lessons learned that may help inform future cancer communications research.
机译:作者描述了来自癌症信息服务研究联盟的3个大型随机试验。正在测试三个基于网络的多媒体程序,以帮助新诊断的前列腺(项目1)和乳腺癌患者(项目2)做出明智的治疗决策,并使乳腺癌患者为治疗后的生活做好准备(项目3)。项目3还测试了癌症信息专家提供的电话回拨干预。所有参与者都将收到针对每个项目的标准印刷材料。据报道,最初的一波登记参与者参加了为期2个月的跟踪访问,初步调查结果主要来自癌症信息服务(1-800-4-CANCER)电话信息计划(项目1:n = 208) ;项目2:n = 340;项目3:n = 792)。项目1、2和3的自我报告使用多媒体程序的比例分别为51%,52%和67%。项目1,项目2和项目3的自我报告使用的印刷材料(全部,全部或部分阅读)分别为90%,85%和83%。回调干预已由92%的Project 3参与者完成。在使用癌症信息服务研究联合会干预措施的患者中,感知的有用性和益处很高,超过90%的患者报告说他们会推荐给其他癌症患者。作者介绍了5个初步的经验教训,这些经验教训可能有助于为将来的癌症传播研究提供参考。

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