Vita tua, mors mea: The experience of family caregivers of patients in a vegetative state

Cipolletta Sabrina; Pasi Margherita; Avesani Renato

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Vita tua, mors mea: The experience of family caregivers of patients in a vegetative state

机译：Vita Tua，Mors Mea：处于植物生长状态的患者的家庭看护者的经验

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This study aims to understand whether, and possibly how, caregivers of patients in a vegetative state experience an emotional paradox between life and death. Individual semi-structured interviews were conducted with 24 (19 females and 5 males) caregivers of vegetative state patients living in northern Italy. Data were analysed using interpretative phenomenological analysis. Caregivers felt they were the only ones able to understand and give answer to patients' needs, but neglected their own lives in their total commitment to the patient. The findings highlight the importance for vegetative state caregivers in considering new possibilities of life that go beyond the assistance of vegetative state patients.

机译：本研究旨在了解处于植物生长状态的患者的看护者是否以及是否可能经历生与死之间的情感悖论。对居住在意大利北部的24名营养状态患者的照顾者（分别为19名女性和5名男性）进行了半结构化访谈。使用解释性现象学分析法分析数据。护理人员认为他们是唯一能够理解并回答患者需求的人，但是却忽略了自己对生活的全部投入。这些发现凸显了营养状态护理人员在考虑新的生活可能性方面的重要性，而这些可能性超出了营养状态患者的援助范围。

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来源
《Journal of health psychology》 |2016年第7期|共10页
作者
Cipolletta Sabrina; Pasi Margherita; Avesani Renato;
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正文语种 eng
中图分类神经病学与精神病学;
关键词
caregivers; family; health psychology; qualitative methods; vegetative state;

机译：照顾者;家庭;健康心理;定性方法;营养状态;

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1. Vita tua, mors mea: The experience of family caregivers of patients in a vegetative state [J] . Cipolletta Sabrina, Pasi Margherita, Avesani Renato Journal of health psychology . 2016,第7期

机译：Vita Tua，Mors Mea：处于植物生长状态的患者的家庭看护者的经验
2. Psychometric properties and relations with coping and family strain of the Health Services and Caregiver Experience questionnaire (HSCE): an outcome measure of informal caregivers’ experience for inpatient care in Italy [J] . Anna Coluccia, Fabio Ferretti, Andrea Fagiolini, BMC Health Services Research . 2017,第1期

机译：卫生服务和看护者经验调查表（HSCE）的心理计量学特征及其与应对和家庭压力的关系：这是对意大利非正式看护者在住院治疗方面的经验的一种成果度量
3. Psychometric properties and relations with coping and family strain of the Health Services and Caregiver Experience questionnaire (HSCE): an outcome measure of informal caregivers’ experience for inpatient care in Italy [J] . Anna Coluccia, Fabio Ferretti, Andrea Fagiolini, BMC Health Services Research . 2017,第1期

机译：卫生服务和看护者经验调查表（HSCE）的心理计量学特征及其与应对和家庭压力的关系：这是对意大利非正式看护者在住院治疗方面的经验的一种成果度量
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6. Psychometric properties and relations with coping and family strain of the Health Services and Caregiver Experience questionnaire (HSCE): an outcome measure of informal caregivers’ experience for inpatient care in Italy [O] . Anna Coluccia, Fabio Ferretti, Andrea Fagiolini, 2017

机译：卫生服务和看护者经验调查表（HSCE）的心理计量学特征及其与应对和家庭压力的关系：一项对意大利非正式看护者的住院治疗经验的结果度量
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Vita tua, mors mea: The experience of family caregivers of patients in a vegetative state

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