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首页> 外文期刊>Journal of nephrology. >Renal registries in the era of guidelines, standards and quality improvement. One view from the UK Renal Registry experience.
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Renal registries in the era of guidelines, standards and quality improvement. One view from the UK Renal Registry experience.

机译：指南，标准和质量改进时代的肾脏注册表。英国肾脏病登记处经验的一种观点。

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摘要

Over the past decade the UK Renal Registry has rehearsed the collection, analysis and presentation of a range of laboratory, as well as demographic, data from an increasing number of renal units. This has been accomplished by fully electronic means. The normalisation of disparate laboratory results to allow comparative audit remains a problem. The exercise has allowed a largely passive and intuitive exploration of the role that such data aggregation can play in a modern clinical context that is influenced by the Evidence Based Medicine movement and the development of Clinical Practice Guidelines, Standards and Clinical Performance Measures. To extend the data collection to clinical variables from these unselected patient groups, in order to explain as well as to describe clinical activity, is attractive but appears yet more challenging. These experiences can be used perhaps by the nephrological community to inform the further development of similar proposals in Europe, especially the concepts and structures required to link such information to the prospect of real clinical benefit.
机译：在过去的十年中，英国肾脏病登记处对来自越来越多的肾脏单位的一系列实验室以及人口统计学数据进行了收集，分析和介绍。这是通过完全电子方式完成的。将不同实验室结果标准化以进行比较审核仍然是一个问题。这项练习使人们能够在很大程度上被动和直观地探索这种数据聚合在现代临床环境中所扮演的角色，而现代临床环境受循证医学运动以及临床实践指南，标准和临床表现指标的发展的影响。为了将数据收集扩展到来自这些未选择的患者组的临床变量，以进行解释并描述临床活动，虽然很有吸引力，但似乎更具挑战性。肾病学界也许可以利用这些经验来为欧洲类似建议的进一步发展提供信息，尤其是将此类信息与实际临床获益前景联系起来所需的概念和结构。

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